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Cancer Journey/ HEALTH

MRI Results//In My Brain During The MRI

MRI

MRI results are CLEAR!  Doctor did not have the full report yet, but she said initial report looks good.  I am so very grateful.  I really was not expecting such great news this time, so it is a HUGE relief.  
_________________________
Below are thoughts during the appointment of my MRI.  Some are deep, some are random, many are negative, some are inappropriate, all are real.
~I don’t want to be here, I don’t like this place today.  I wonder if Jay already went home?
~ Amy, change your thought patterns.  If it were not for this place, you never would have met the amazing people you have, they would not be in your life. This place and those people have helped bring the healing.
~ 6:00 p.m. appointment. Yep. I’m the last of the day, it is deserted up in here!
~ Check in lady makes a funny about having my information memorized.  It is not funny, but I feel like I should smile at her anyway.
~ Oh look, another bracelet letting me know what my name is, I’ll add it to my collection. 
~ I don’t want to sit alone in this waiting room, this place I met my L girl. Stupid lump in my throat.  Her laugh, her smile.  I remember. 
~So many forms to fill, so much history. Write fast, get it done. 
~Tech is familiar, she has scanned me before. 
~Strip, change into hospital gown & pants.  The image in the mirror is kinda cute, I look like a little girl. Vulnerable. These pants swallow me.  I roll them at the waist.
~Crap, I forgot about the I.V. part. I am used to the pokes, but not.
~O.K.– that was not so bad, thank you lucky vein. 
~She comments on my thin, healthy blood.  They always do. Cancer patients usually have thick sticky blood. I would tell her it is from my juicing and green smoothies, but I don’t feel like talking, and she might think I am strange.
~ Hello, machine you are large and loud, and where you live is drafty and cold!
~ A sticker where the lump is, it looks like a cheerio.  I’m hungry. 
~Time to lay face down, should I turn my neck to the side or go face first?  I will try face first this time, last time killed my neck. 
~Arms above my head, get comfortable, Amy.  No moving for 20-30 minutes.
~She wraps the I.V. cord around my fingers to keep it out of the way, not too comfortable. 
~A button in my other hand, in case I need them.  I hope I don’t accidentally push it.  Relax your hand, Amy. Relax. 
~I am exposed, I wonder who is behind that one way glass wall? I did see a young guy, arrgh. 
~Tech helps me line up my chest. There are two holes I need to fit into.  They must make these for large people. Tech affirms my thoughts. 
~ I wonder what my new breasts look like, hanging through holes, to the people behind the glass.
~ Tech reaches to adjust, to line them up perfect.  How awkward.
~ I feel bad for large women, they must feel even more exposed hanging in such a way.
~ I wonder about the people who laid here today, who will tomorrow.  I will pray for them as I am scanned.
~ Brrrr…she is so kind to cover my cold arms and hands with towels. 
~ She leaves, I am alone, but not. 
~ She comes back, to stuff earplugs into my ears.  I then remember this is the loud machine.
~ Its noise at times sounds like an automatic machine gun, other times it just clicks.  Just as I am going to my happy place, it beeps and sounds like my alarm clock. When it is at rest, it makes a big air-y, rhythmic breathing sound.  It reminds me of hearing my baby’s heartbeats during ultrasounds, but much more intimidating and not so cute.  It breathes like it is alive.  I don’t like it.
~I ask God to protect my body from the radiation exposure this machine gives.
~ I start to worry about the accumulating affects of radiation. I often worry about this. Time to change my thought patterns again. 
~ Only about 10 minutes in, and I am regretting my face first decision.  All the weight of my head is balanced on my brow bone.  Are we done yet?
~Tech comes in and says we have to start over.  They must make sure they are getting the area of the sticker.  She feels me up again, adjusting.  But says to not move my upper body or head.  Crap.
~Within 10 more minutes, my head feels like a bowling ball.  I pretend I am in a competition on Survivor.  The challenges where they have to stick it out in very uncomfortable positions are my favorites.  I am a Survivor.
~I wait for the finale, when they inject my I.V. with contrast.  I can’t wait for that part, it will mean the test is over.
~Trying to go to my happy place, but can’t find it when it is so LOUD up in here!
~I start to think of the results of the test.  The What-if’s.  I think I should write a post called “Living in the What-If’s”
~So. Much. Pressure. On. My. Brow. Bone.  Trying to pretend I am at the masseuse, they use these kind of headrests..why are theirs so much more comfortable?  For the price of this test, this headpiece should be pillow soft and covered in velvet.
~Can’t wait to look in the mirror when this is over and see the dent in my brow bone.
~I finally, FINALLY feel cold moving through the I.V. tubing entwined in my fingers.  Up to my arm, into my lucky vein.  Cold. I taste metal. I  was warned.  I envision lighting up neon.  Can’t wait to detox.
~Tech comes in and apologises for the length of the test.  40 minutes.  I ask her if I have a dent in my head.  She laughs. 
~ She takes out the I.V.  It drips blood all over my pants.  I think it is such a pretty color and looks like art, but I don’t tell her, for she might think I’m strange.
~I go to change.  I feel lighter.  My face looks like I have been wearing a wrestling helmet. All red and splotchy, a bit dented. SO happy it is over.  
~I feel more stable emotionally, so I take a minute to sit where we sat, my L girl and I.  At that moment, my phone beeps, alerting me of a text.  I look, 3 pictures to make me smile, from my L girls family.  Her brother, trying on her wig, made me laugh which echoed in empty hospital.  Moments of fun between a brother and sister, smiles in the midst of tragedy. The last pic is just her, and her amazing smile.  
~I find mine through tears.  Time to head home.
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THANK YOU all so much for your notes of encouragement and especially for your prayers while I waited for this test.  

Cancer Journey/ HEALTH/ Love/ Music Renews/ Spiritual

Health Update

{my momma came and took some pics of me}

Well, I saw Dr. M today, my Oncologist.  She is the most calming person!  She walks in and brings her smile, knowledge and care with her, which I always appreciate.

She felt my lump area, and was able to push through it and find a 1/2 centimeter area that she is wondering about.  It is in the same area that a lymph node was found in my upper chest, right under my old port incision.  She wants to look into it further with a breast MRI next week.  I have an appointment on Monday and will have results a few days after that.  Even if it is just a lymph node, it is right in the path between where my old tumor was and positive nodes under my arm, so she wants to keep a close eye on it.  She also said that usually you should not be able to feel lymph nodes, and this is the second time in a month that she has, so an MRI is the way to go.

{It snowed today! Snow boots rock!}

She still feels like the largeness and roundness of what I can see in that area is due to radiated tissue moving around and bunching.  That was relieving, in that if we do find cancer, its not this large tumor growing out of me.  I’d much rather be dealing with cancer in a lymph node than a secondary tumor.  I breathed easier when I realized this.

I could feel the area roll under her fingers as she felt around and it was a small bit tender.  It gave me the ebee-jeebies when she would do it.  Blech.

My initial blood work came back perfect.  All white and red cell counts are right on!  I look really healthy on paper, and feel pretty healthy, so I have decided to stop worrying (as much as possible) and act like I am healthy!
{reading blood test results}

I am doing much better emotionally.  I say this every time– but the minute I let you all know about any health concerns, I am blanketed in peace.  I know this is your prayers for me and it really is amazing.  You help remind me that God has been and is so close and has brought so many amazing things my way while dealing with this cancer crap.  He knows what He is doing, so I can let go.  Why do I so often forget this??

Love to you all.

Cancer Journey/ HEALTH/ Love/ Spiritual

A Health Update & A Confession

Lately, I have lost my grasp of center.  So much of it has to do with how I am spending my time and what I am ingesting– and I’m not speaking food here.  No recipes in this post!

 Does this make sense?

The mind is powerful, and what we choose to think on, listen to, and read has way more impact on us than what we might think.  I’ve become a bit sloppy when it comes to what I was allowing into my thoughts, mind etc. Maybe lazy is the word?  Don’t get me wrong..a bit of mindless t.v. is a-ok by me, but when what I am reading, music I am listening to, and things that I am watching all have the same negative message, it does eventually affect me!  I find my thoughts gradually become more cynical, I react to life instead of respond, and my sense of center, of peace, slowly dissipates.

Intention.

Living an intentional life is what I so desire.  In order to do this, I need to be grounded in truth, which means ingesting truth on a regular basis.  This doesn’t just mean ingesting the Word, but also His Words through other people, through music and through reading. It means seeking out what I want my brain to be filled with.

When I am not living life with intention, I feel weak and vulnerable.  Storms of life come and I’m blown over pretty easily.  That happened this last week.  We are in the process of again, checking a lump that we have been watching.  I had a scan that lit up a bit, but is borderline.  I meet with my Oncologist on Thursday to discuss the “now what.”  It may be another biopsy or more scans or both.




I sure wish I could say that I respond well to these situations. You would think by now I would. This time I think my body just shut down and I took a 7 hour nap the day after the scan.  It is amazing how emotions can affect the physical body, which makes being grounded and centered, at peace, even more important.

Confession time:
Another thing that has taken my peace is pride.  God through husband revealed a couple areas that I need to be more intentional in.  They have to do with money, and I immediately go into excuse mode for my actions.  I am a very frugal person if compared to the average Joe, and I just want to hide behind that instead of admit I could have been more intentional with my spending this month.  I also want to blame food prices and cost of holidays.  I want to blame anything but me, but if I am truly honest with myself, I can do better and need to.  This revelation came in the middle of all the other static my health has created.  Not great timing, kinda ticks me off really, but I think I am ready to open my hands and be responsible for what is mine.  Closed fists creates blame and denial.  Pity parties inhibit growth.

I’m starting to unclench

which means I am almost done with my pity party 😉 and I feel His Spirit working within to change my thought patterns.  Nuggets of truth here and there.  Gifts dropped in my lap from friends.  A surprise visit from my Mom.  An exciting opportunity to travel, speak and share my story come the New Year.  These are all whispers, (some shouts) from God to me, some tangible, others not, but they all remind me that:

~He will never leave me or forsake me
~He knows the plans He has for me
~He has shown up in the past, within my pain
~He weaves stories, turning ashes into beauty
~He always forgives
~He meets my confession with compassion
~I can do anything through Him who gives me strength
~His promises extend to my children, and He cares for them more than I can imagine
~He is good, ALL the time.  All the time, He is good.
~He makes ALL things, work together for my good!
~There is meaning and purpose in all that passes through His hands to me.

I will let you all know what Doc thinks after my Thursday appointment.
In the meantime, I am holding to the truths in this song, lately with 2 fingers, but soon to be with both hands, empty..

Cancer Journey/ HEALTH

Health Update

Nothing too exciting, just wanted to update you all after writing about my stomach scans at this post.

I had an ultrasound of my stomach and they found no gallstones large enough to show up.  I was scheduled for a stomach scan to rule out metastasis, but I cancelled it.  My stomach pain has gone away, and I did not want to add to our medical bills with another scan.  I have a full set of scans coming up at the end of the year, so as long as I am pain free, I will wait for those.

I still do think it was gallbladder related.  I have been taking steps to flush the gallbladder naturally and I no longer feel any discomfort or pain.

Thanks for caring!  Blessings to you all.

Cancer Journey/ HEALTH/ Love/ Spiritual

Living Like I’m Dying & A Health Update

I heard this song in the car today, on the way to the doctors office.  
Ready for confession time? 
The last 2 days I have been holding a grudge against someone I love dearly, because I was hurt by them.  Instead of lovingly communicating and talking it out, I just wallowed in my hurt and decided I was mad.  Now granted, I have not felt great, physically, the past few days (I will get to why in a moment),  but I’ve learned that physical pain is no excuse to treat someone with disregard, creating emotional pain for everyone involved.  
This song spoke to my heart, a great reminder of what cancer has taught me this past year–we all need to live like we are dying.  “86,400 seconds” is all we have in each day, and every second counts!  I don’t want to be wasteful with my moments.
After a long discussion with a doctor today, I left his office and again, started thinking of the importance of this song.  
I have been having stomach pain the last week.  It is in the evenings, and there have been 2 nights where I thought I may have to go to the emergency room if it didn’t let up.  They are checking my gallbladder for stones with an ultrasound tomorrow.  They are also going to check my stomach lining next week.  
This is the test that has me a little nervous.  Women with lobular breast cancer are more likely to get ovarian and gastric (stomach) cancer metastasis. I just had a dear friend die from stomach cancer.  I’ve seen firsthand what what would be in store.  Facing reality, I know that could be me.
Despite this reality, I have a peace.  A peace that “passes all understanding.” (Phil. 4:7)  I know, KNOW there is a perfect plan for my life, no matter how long or short it is.  I KNOW God has me in the palm of His hand, and nothing can separate me from His love.  This makes me think of my favorite Bible verse:
For I am convinced that neither death nor life, neither angels nor demons, neither the present nor the future, nor any powers, nor anything else in all creation, will be able to separate us from the love of God that is in Christ Jesus our Lord.
Romans 8:38,39

This peace, this unending love from my Creator, allows me..frees me.. to live like I’m dying.  To release hurt, to come out from “hiding behind skin that’s too tough,” to say I love you enough.  To admit fault, wrongdoing. To ask for forgiveness and to forgive.  To let go of “Shoulda, Coulda, Woulda” and live like I shall, can and will.

To take the 86,400 seconds in a day and be present in them.

Won’t you join me?

“Live Like We’re Dying”
by cutie Chris Allen 🙂
Sometimes we fall down, can’t get back up
We’re hiding behind skin that’s too tough
How come we don’t say I love you enough
Till it’s to late, it’s not too late

Our hearts are hungry for a food that won’t come
And we could make a feast from these crumbs
And we’re all staring down the barrel of a gun
So if your life flashed before you,
What would you wish you would’ve done

Yeah, we gotta start
Looking at the hands of the time we’ve been given
If this is all we got and we gotta start thinking
If every second counts on a clock that’s ticking
Gotta live like we’re dying

We only got 86,400 seconds in a day to
Turn it all around or to throw it all away
We gotta tell them that we love them
While we got the chance to say
Gotta live like we’re dying

And if your plane fell out of the skies
Who would you call with your last goodbye
Should be so careful who we live out our lives
So when we long for absolution,
There’ll no one on the line, yeah

Yeah, we gotta start
Looking at the hands of the time we’ve been given
If this is all we got and we gotta start thinking
If every second counts on a clock that’s ticking
Gotta live like we’re dying

We only got 86,400 seconds in a day to
Turn it all around or to throw it all away
We gotta tell them that we love them
While we got the chance to say
Gotta live like we’re dying

Like we’re dying, oh, like we’re dying..

We only got 86,400 seconds in a day to
Turn it all around or to throw it all away
We gotta tell them that we love them
While we got the chance to say
Gotta live like we’re dying

You never know a good thing till it’s gone
You never see a crash till it’s head on
Why do we think we’re right when we’re dead wrong
You never know a good thing till it’s gone

Yeah, we gotta start
Looking at the hands of the time we’ve been given
If this is all we got and we gotta start thinking
If every second counts on a clock that’s ticking
Gotta live like we’re dying

We only got 86,400 seconds in a day to
Turn it all around or to throw it all away
We gotta tell them that we love them
While we got the chance to say
Gotta live like we’re dying

Like we’re dying, oh, like we’re dying..

We only got 86,400 seconds in a day to
Turn it all around or to throw it all away
We gotta tell them that we love them
While we got the chance to say
Gotta live like we’re dying.. 

Cancer Journey/ HEALTH

Health Update

Remember the implant I told you about?  The one that was slowly migrating south and ignored my whispered pleas to stay put? Well, it had to pay for its rebellion and has been replaced with a brand, spankin’ new one.  This exchange happened yesterday and surgery went really well.

I was completely covered in prayer, I know this by your comments here and my guestbook comments at my Caring Bridge site.  Boy, did I feel those prayers!  I woke up in the morning with no apprehension, and had complete peace and even joy all day.  Such a crazy feeling.  So very cool.

My Todd, Mom & Dad all kept me company before surgery.  My loves.

It was all so familiar:

blood drawn in arm,  I.V. in hand,  paper gown,  silly socks,  silly hat,  sexy compression stockings,  a bazillion questions and signatures,  kind nurses,  capable doctors,  sweet anesthesiologist,  a ride to the surgical suite,  a transfer to the surgical table,  arms stretched out  and strapped down,  my body in the shape of the cross that brought thoughts of my Jesus, drugs to bring a deep sleep,  the question “are you feeling that yet?”,  asleep and awake before I can answer, a moan from me, a question from her “how is your pain?,” my not- so- familiar answer 

“I have none.”

This was the first time I woke from surgery and didn’t need any morphine or additional I.V. pain meds.  How cool is that?   After crackers and apple juice, my mom helped me dress and before I know it we are on our way.  We stop at Bread & Cup for a vegetable soup and sandwich to bring home. My mom made her famous Sloppy Joes which delighted my kids who ate 2 sandwiches each!  My mother-in-law, who saw my girls out to and in from school, joined us.  She then gave my girls a ride to a skating party, and I was left in a quiet house to rest.  

Really… a great day.  How strange.  Sometimes God is.  I love it when He takes something that one might usually dread, mix in His supernatural peace and gifts, and makes it something beautiful.  You asked Him this for me and He answered “Yes.”

Right now it is 3 a.m. and sleep just won’t come.  My throat is sore and I feel like I was punched super duper hard in the chest.  They cut through my chest muscle and stitched ‘myself to myself’ to create a new “fold,”  so I am quite swollen and sore.  Ice packs help.  It is only painful when I move, so I am practicing stillness.  This physical stillness brings on a beautiful spiritual stillness.  I am being still and knowing that God Is.  

God is God.
God is great
God is present.
God is good.
God is love.  
God is always.

God is.






Cancer Journey/ HEALTH

Surgery Tomorrow


I had a fun, witty, informative post written about my surgery tomorrow.
  And then, I was interrupted…for like the 18th time…and somehow it was deleted.  It is one of those nights where the word “MOM!” has been said one too many times, and I need to get my needy punkins into bed. (Dad is working late at a volunteer training)

SOOOO….
Here are to-the-point details..ready?
Surgery tomorrow morning 10:30 at Methodist Outpatient in Omaha.
Implant exchange and internal sling revision, to fix an implant that does not want to stay “up.” (That explanation was so much more fun and interesting in my last writing.)
 {sigh}
I am ready.  I am tired. I wore myself out preparing to be useless for a week. 
I really am doing better than I sound.  Really.  Just in a bit of a sarcastic mood..
I’m ready to do this thing!!  
Bring on the I.V., the gown that I freeze in, the cup to pee in!  I’m ready to count backwards from 10, to be asked if I’m ready take a nap, to sign the papers that state that I understand there is a very small possibility that I may not wake up from that “nap”.  {Slightly disturbing}
C’mon silly “one-size-fits-all” socks, blood pressure cuff that is on auto squeeze, bed on wheels, bright blinding surgical lights, masked surgical team that may be smiling at me but who knows?  
I got my prescription anti-nausea patch to stick behind my ear—the one whose price made me nauseous. I got my pain pills that constipate me, my anti-constipation pills, my antibiotics to ward off any infection and my hibacleanse to shower with tonight.  I’m stuffing myself full of food and drink because cut off- time is at midnight.
I am ready. 
I am ready, surgery number 5. Let’s do this exchange!

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