the thunder outside reminds me how big our God is.
· · August 31, 2010 at 8:20pm
It also reminded me of a song that we sing at church. I immediately looked up and watched this video at least 3 times in a row. This song is a favorite and one to this day God uses to remind me of who He is.
It’s 4:00 a.m. & I can’t sleep.
This is new to me. Sleep never eludes me, it has always just come.
I realize what a blessing this is.
Fall is coming.
I find myself in a funk.
This, too, is new to me.
Usually come fall I find renewed energy in the routine that it brings.
I remember spring. The spring in my step. Why am I falling back this fall?
I am falling back instead of springing ahead.
I hate the discouragement this realization brings.
“Why are you downcast, O my soul? Why so disturbed within me? {Psalm 43:5a}
Why am I so downcast?
Why the discouragement?
What to do about it?
I need to sort it out, so I write.
My diagnosis 1- year anniversary is coming up–August 31.
I should celebrate that I am here. Instead, I mourn what was.
The ‘ongoing-ness’ of this reality is something I need to accept.
I pictured being done with it all by fall, actually, by summer!
Instead, the treatment brings on complications that keep me visiting doctors on a much too- regular basis.
Cysts, keloids, insane hormone levels.
Implants that won’t stay put, requiring another slicing into this already so scarred body of mine.
I hate cancer.
Decisions need to be made. I grasp for wisdom. I search for answers.
I find few, for I am in a “special” category.
Very few studies are done on women my age. Premenopausal.
There is much unknown.
Doctors give me homework to read up on, to help our decisions.
This research forces my eyes to face the stark statistics of my “Stage 3, 6 cm. tumor, with lymph node involvement” cancer.
50/50.
I have a 50/50 chance I will be alive in 10 years. I did find a statistic that said 60/40. I liked that one better.
I am 34.
Some days I feel so young, in my 20’s. These days, I feel old. This past year has aged me, I feel like an old soul.
I want to live into my 80’s!
I want grandchildren.
I want wrinkles & crows feet & sagging & cellulite!
Despite wanting cellulite-ha- I need to exercise.
All summer I said, “come fall I will exercise. I must, for it cuts chance of recurrence”
I take an hour walk, but then have to recover the next day.
A 2 hour nap in the morning and a 2 hour nap in the late afternoon.
The fatigue is incredible, all from a simple walk!
The only thing that brings on this type of fatigue for me is exercise, but I am told it is the best treatment for fatigue.
I do simple pilates for strength and the same day my arm wakes me up, aching in the night.
Will exercise bring on lymphedema?
I dig out my granny compression sleeve, my pout goes even deeper as I put it on.
Its tightness squeezes the motivation right out of me.
And then, there is the subject of money.
I hesitate to talk about it so publicly, it feels tacky.
Yet, it was a talk about money that caused the rest of my dominoes to fall, sending this crushing discouragement.
He gently tells me, “Our monthly expenses are so much higher now due to your health issues. We need to find areas to cut”
We search the monthly budget numbers and start cutting, my anger at cancer growing with each snip.
I cry. I feel guilty. I feel bad that my tears make him feel bad.
Youngest daughters piano lessons–snip.
A date night a month-snip.
Family tradition outings. My most loved coming up, the pumpkin patch–snip.
The idea of a gym membership for me–snip.
Our dream of Disney before the kids get too old for it–snip
Even as I write this I feel ashamed.
It is all so shallow.
We have shelter, a beautiful home.
We have health insurance–a luxury. So many in my boat don’t.
We have food and water. I think of mothers in Africa this very minute walking miles with limp children in search of a drink. Could you imagine?
I know these things. Yet I am still frustrated.
I think the emotions come from knowing its my needs, due to this dumb disease, that is causing all the trimming.
I hate cancer.
Fall also brings a much anticipated cancer support group, meeting 3 hours a week for 3 months!
It starts September 1st.
It is put on by St. Elizabeth Hospital, my home away from home.
I am excited. I know a few of the women that will be attending, and I know of others and their stories.
Excited, but apprehensive. I know this group will bring me into an intimate friendship with those whom I could lose.
Am I brave enough?
Some are living through what is my worst nightmare. Reccurence.
I’ve read their stories, their story started as mine.
Stage 3, large tumor, lymph node involvement.
The treatment was exactly mine.
And now, a few years later, they are a Stage 5, cancer spreading to bones, to lungs.
Will that, too, be my story?
My heart breaks for them in reading their stories.
I marvel at the strength and joy I see in these women.
Despite the statistics they face daily, they smile at me.
A reminder that I need to find mine.
I don’t want to fall this fall.
I want to thrive, survive and live fully!!
I know what to do to get out of this fall funk,
I know I will, for “He who began a good work in me will be faithful to complete it.” {Philippians 1:6}
I know it is a matter of processing, (thank you for allowing me) and then a “throwing off everything that hinders and entangles, and running with perseverance the race marked out for me.” {Hebrews 12:1}
All the while, “being still and knowing that He is God” {Psalm 46:10}, and “remembering His good works of the past” {Psalm 77:11} and of now. I must list the gifts, exchanging my negative, falling thoughts for steady, thankful truth.
And when it is all I can do, I know that I have a safe place to lean hard into, even fall into, this fall.
He is my Hope, so I will.
“Why are you downcast, O my soul? Why so disturbed? I will put my hope in God! I will praise Him again, my Savior and my God!” {Psalm 43:5}
Health update:
I have spent a lot of time at the Dr.’s office this summer. Lots of blood tests and pelvic ultrasounds, and many hours discussing the best way to go for my “special case.” We have been sorting through my cycles and why I am forming ovarian cysts each month. The cysts are uncomfortable and literally, a pain in my… “side”:)
~Side note…of all the treatments and tests I have gone through this last year, who would have “thunk” that pelvic ultrasounds would be some of my most dreaded!! I have a tilted uterus, so lucky me has to drink at least 64 ounces instead of the normal 32 ounces of water, so they can see my ovaries on the scan. I work so hard to get the timing just so, but of course, they are usually running late. Then I get to lay down and have them push with the ultrasound scanner, on my very- 64- ounces- full bladder! Absolute torture!!! I have had 3 in 3 months, and my girls love hearing how dreadful it is…they think it is so funny. They are waiting to hear a story of mommy wetting herself in the waiting room…I have a dreaded feeling it may happen someday…
These dumb cysts are a side effect from Tamoxifen, the hormonal treatment that is taken for 5 years. We have spent the last 3 months making sure the cysts are not cancer and are not growing at an alarming rate. Praise God, they are not.
We have also been keeping an eye on my hormone levels. This past week I learned that due to the Tamoxifen/ovarian cyst issues, my hormone levels (estradiol and progesterone) are sky high. I have the hormone levels of a woman in her second trimester of pregnancy!!
My doctor thinks these high levels are what is causing my extreme fatigue at times (it could be long term effects of chemo and radiation, too). I have been very discouraged this week with my fatigue levels. I hate spending daytime sleeping…
The kicker is that my cancer is fed by hormones, so to have high levels running through my body is not good. At all.
My gynecologist is very, very against sending me into menopause by surgically removing my ovaries. This is something I too, want to avoid.
We are praying for wisdom and direction. I will be talking to my Oncologist about going off 5-year Tamoxifen (which is causing cysts and my hormone levels to skyrocket) and going on a Luteinizing hormone releasing hormone (LHRH) blocker. Basically, it will suppress my hormone levels, but when I stop taking them years down the road, I will still have ovarian function.
Hmmm...other health news…
I have an implant that is slowly sliding down, it is about an inch “off.” I am not happy with it. This means another surgery. I’ve tried whispering softly to it to behave and stay put…it didn’t work.
My daughter asked if it will slip all the way down to my belly button:) which I think may have spurred on a bad dream last night –my implant slipped all the way down to my ovarian cyst, caused the cyst rupture, and I was rushed back to the hospital. Oh, yes…it was so realistic…. I felt that baby slide ALLLL the way down to my hip! EEEYYY! I woke up in a bad mood very annoyed at my boob.
Haven’t you missed my TMI (too-much-information) updates???:P
Hey…really. I held back. I could have told you about all the side effects of having the hormone levels of a pregnant lady!!!!
{a video of our last year}
*If video gets “stuck” click on “youtube” at bottom right to watch it on YouTube
——————————-
“Cause we bear the light of the son of man
So I’ll walk with you in the shadow lands
Till the shadows disappear
Cause he promised not to leave us
And his promises are true
So in the face of all this chaos baby
I can dance with you”
–Dancing In The Minefields, Andrew Petersen
I love that I get to keep on dancing with you, Todd.
Happy Anniversary, Baby.
————————————-
{A video of our years together that I made last year. I’ve had so many hair-do’s and a few don’ts!!}
Just when it starts getting “boring” around here, I FIND A LUMP.
My hair measures 2 inches, it is
short
spiky
sassy
stubborn.
Very fitting, I’d say.
My 2 week old incisions are small pink lines, its amazing how the body insists on healing.
The bump of my port–gone!
The large lump of lobular carcinoma–gone!
The lumps and bumps of swollen and cancerous lymph nodes–gone!!
I’ve gained a few lumps, the two on my chest I consider a gift—thank-you-very-much, Cancer!
In a few weeks, they will form 2 bumps on lumps. 🙂 Finishing touches.
The few lumps on my ovaries? I could do without, but we will figure that out as we go.
I sit and read a stack of medical records, and I am in awe.
My body has been invaded so many times.
Pokes and prods.
Scopes, scans and scalpel.
Every time it insists on healing.
Pathologists, Radiologist, Oncologist, Radiation Oncologist, Dosimetrist, Radiation Therapist, Physical Therapist, Lab Technitions, General Surgeon, Plastic Surgeon, Gynecologist, Primary Care Doctor, Cancer Nurse Navigator, Survivorship Navigator, Genetic Counselor, Oncology Nurse.
Over the last 9 months, I have learned their names.
They are the key players in my healing, used by the Healer.
They poke,
touch,
scan,
tattoo,
palpatate,
remove my insides,
replace my insides,
put me to sleep,
wake me up,
lay me down,
sit me up,
they look at me with eyes serious
they look at me with eyes encouraging.
I read the notes they have written about this body of mine.
I see their signed names on my papers and I feel a gratitude that is overwhelming.
They speak words that scare,
They speak words that give hope
“Keep healing. Watch for bumps and lumps.”
With these words I am sent on my way, in search of a new normal.
I’ve started this search already, and have learned that it does not have to be a frantic one.
I’ve learned this as my heart has been healing, too.
My heart feels healed in this moment,
whole and held,
cupped gently
and protected by heavenly hands.
It brings a calm reassurance, a peace.
It allows for the slow and the still, it is a restful confidence.
A deep satisfaction.
I am held, and always will be.
Even through recent scans and test- result waiting,
I felt the steady hold, gently pressing the peace and calm.









