MONDAY, APRIL 18, 2011 9:00 PM, CDT
TUESDAY, APRIL 19, 2011 6:13 PM, CDT
I am glad I did, because I learned my doctor is out of town until Monday!
I talked to a nurse, and she read my scan results, but kept telling me that Dr. Midathada could explain them further and answer any of my questions.
Here is what she said:
CAT scan:
was NEGATIVE for signs of metastatic disease 🙂
It does show a dominate ovarian cyst, this is one we knew about as it had showed itself back in September, but there is growth. The radiologist suggests that I have an pelvic ultrasound done to check it out. Ovarian cycts are rarely cancer, but with my history she was sure my doc would want to check it out. That’s kinda poopy.:(
Bone Scan:
There was still uptake in my rib area. They called it “degenerative changes” on the report, and it sounds like it has progressed some? The nurse said they will want to do a bone density check on me.
When I asked her if that could be cancer related or a sign of cancer, she said she will have the doctor call me to answer my questions. Hmmm.
Sooooooo..
I am very, very thankful the scans didn’t light up everywhere showing cancer spread. That is AWESOME. My liver looks good, my kidneys look good, my lymph nodes look good, my chest and breast look goooooood:) Ha. I am going to celebrate that!!!
But…
sounds like my life of doctor appointments will continue for awhile.
Oh well, what is a few more…I’m not sure what I would do with myself if my life was devoid of all doctor appointments…
My main prayer request is that we could get answers quickly, and all this appointment craziness will be over with by the time my girls get out of school for the summer.
MONDAY, APRIL 11, 2011 9:54 AM, CDT
I saw Dr. Hinze, my plastic surgeon last week. I always leave with a smile from his office. THEY ARE ALL SO NICE. The nurses were giddy over my new hair growth, which was “mussed up” by Dr. Hinze the minute he got walked in the room. He is so funny.
I had 3 small scar areas that just were not healing up. He took one look and knew what needed to be done. There were 3 little suture knots on the inside that would not dissolve. He fixed me up in minutes (my scar area is numb–thank goodness!!) and I am amazed! I was so frustrated with my body that it just wouldn’t heal right, but just 4 days after his procedure, those spots are almost gone. Amazing.
There is some asymmetry that he is going to fix in about 4 weeks if Dr. Midathada gives the ok. I have ribs that flare a bit on the left so he will do a quick right implant exchange–gotta go bigger:-) It is a simple, outpatient surgery. Healing should be easy, thank goodness it is my right side so he can make the incision on skin that was not radiated. I AM SO EXCITED. I really am happy with my reconstruction results, but this will take them from good to GRRREEAAT!:P
I have an appointment with Dr. Midathada, my oncologist, tomorrow morning. I am eager to hear her thoughts and the “now what” plan.
I will fill ya’ll in on the plan when we get on.
xoxo to you all.
Psalm 55:22
Cast your cares on the Lord & He will sustain you!
TUESDAY, APRIL 12, 2011 3:03 PM, CDT
She was pleased with my energy level and checked me out thoroughly.
My white blood cell count was a bit low, but she was not concerned and said I tend to run low normally.
I will be having scans next Monday. A CT scan and a bone scan.
Scanxiety!
Dr. wanted to have a baseline scan. The bone scan will show if those original areas that lit up on my ribs went away, and will check a sore spot I have on my left scapula, it is about the size of a dime and has been sore for about a week or so. I notice it every time I reach forward. I did some sit ups last week, I am hoping I just came down too hard on it or something. ?
I get to drink lovely contrast for scans–can’t wait!
We should have the results the following day–Tuesday–I will try to keep the “scanxiety” to a minimum until then. I’m actually doing fine with this–so far.;)
I will be seeing her again in 3 months.
She explained to me that there are certain types of cancers that, once the patient has hit the 5 year mark, she can confidently say that they will not see that cancer again, and if they ever get cancer again, it would be a whole new, different type.
She said for breast cancer and melanoma (I’ve had both now), she cannot say that.
These cancers can return years after diagnosis, so I am to get comfortable with that reality and just be aware of my body’s signals and faithful with checkups.
This reality is one I have spent the last few weeks trying to come to grips with, and I know that as I continue to grow and continue to trust, that I will figure out how to fully live with it. So much of the battle is with fear and unknowns, but God has shown me over and over that I am His child and that He’s got me no matter what. He has shown me that He is faithful and trustworthy. So it is my job to keep CHOOSING to trust.
Of course, my Jesus Calling
TRUSTING Me is a moment-by-moment choice. My people have not always understood this truth. After I performed miracles in the wilderness, My chosen children trusted Me intensely–but only temporarily. Soon the grumbling began again, testing My patience to the utmost.
Isn’t it often the same way with you? You trust Me when things go well, when you see Me working on your behalf. This type of trust flows readily within you, requiring no exertion of your will. When things go wrong, your trust-flow slows down and solidifies. You are forced to choose between trusting Me intentionally or rebelling: resenting My ways with you. This choice constitutes a fork in the road. Stay on the path of Life with Me, enjoying My Presence. Choose to trust Me in all circumstances.
Psalm 31:14
But I trust in you, Lord;
I say “You are my God.”
I pray everyday to give me more time here on earth with my friends and family. I pray to allow me to wake each morning to see another beautiful day he has created. I pray to grow old with my loving husband. I pray to see my sisters get older and graduate and one day marry (not that I’m rushing that one). I pray to be cured from this horrible disease that has affected so many people I love and grown to have a relationship with. I pray that one day this will all be a bad dream, but grow so much stronger from this (I know I will never forget this, this has made me who I am) I pray that one day that I can live my life somewhat normally without the BIG C hanging over my head. I pray that one day I will have a family of my own and be called Mommy. Out of all these things I have mentioned I pray that whatever God’s will be done, not mine. I want whatever God has in store for me next, because he knows what is best for me.
I know my husband does not read my journals, but I want everyone that reads to know, I would not be where I am today without my husband or God…he is the most amazing man that anyone could ever ask for, I love him dearly and I’m so grateful that he really does love me unconditionally. I have heard stories of men that have left there wife’s during treatment, because A.) They couldn’t handle it (they couldn’t!! imagine what the one ACTUALLY going through it feels like!!) or B.) They just didn’t want to deal with all the stress and headache “CANCER” deals with. It definitely has it’s ups and downs, but John always says, “We have to do what we have to” we really have no choice in the matter. So thank you to all those husbands out there, that really mean…In sickness and in health, cause John did!
My heart is also heavy for Japan.
The images are just unreal and hard to imagine that it is reality.
Such suffering is so hard to see, and I am reminded, as the song says below,
that “This is not our home.”
We pray for blessings
We pray for peace
Comfort for family, protection while we sleep
We pray for healing, for prosperity
We pray for Your mighty hand to ease our suffering
All the while, You hear each spoken need
Yet love is way too much to give us lesser things
‘Cause what if your blessings come through raindrops
What if Your healing comes through tears
What if a thousand sleepless nights are what it takes to know You’re near
What if trials of this life are Your mercies in disguise
We pray for wisdom
Your voice to hear
We cry in anger when we cannot feel You near
We doubt your goodness, we doubt your love
As if every promise from Your Word is not enough
All the while, You hear each desperate plea
And long that we’d have faith to believe
When friends betray us
When darkness seems to win
We know that pain reminds this heart
That this is not our home
What if my greatest disappointments
Or the aching of this life
Is the revealing of a greater thirst this world can’t satisfy
What if trials of this life
The rain, the storms, the hardest nights
Are your mercies in disguise















