Cancer Journey/ HEALTH

A Rambling Update On My Health

{below is from my Caring Bridge journal.  
For consistent health updates, please visit my Caring Bridge site.}

I’m gonna start with some good news…not that I have any bad:) Yay!

We got the results back for the BRCA 1 gene test, and I tested NEGATIVE!!  I was so very excited about that!  BRCA 1 is a test for a gene mutation that runs in families that significantly increases the risk of breast and ovarian cancer.  I was very worried for my 3 girls and my mom/sisters if this test would have been positive.   What an answer to prayer!

It was great to see my doctor today.  She was very pleased with how the tumor area felt.  She is thinking the remainder of what we feel may be scar tissue, not tumor!!!!    She cannot say this for sure, but she seemed pretty positive.  Super exciting!

The lymph node area that has been concerning me was felt by her.  She was only able to feel one and some swelling.  I’ll try to explain what she said…

She said on one hand, she is concerned because that one lymph node has not changed.  IF it contains cancer, that is not good…we want to see change.  BUT, she said that the MRI showed the lymph node as being swollen, but no “activity” yet, so it could be that it is not cancer and just a lymph node that I have had awhile that for some reason has been swollen.  Also, because I have felt different changes, (lymph nodes seeming to swell then go down within a few days,) that would be another sign that it is not cancer. She said that cancer would tend to stay consistent, grow, or significantly shrink from chemo…not come and go.  I asked her if it is very common for people to just have swollen nodes under their arms that just hang out for awhile, and she said it is very common.  Cool.  I’ll take it.

So there really is no real answer until surgery is done and nodes are removed and studied. I am gonna try to quit worrying about it.  I had no idea how easy it is for me to worry until all this cancer crap!

Because of the lymph nodes being a bit moody and her ability to feel what I have in my other breast (small, pebbly area), she wants to do another breast MRI before surgery.  It will just ease both our minds and let us know if it is FOR SURE surgery time without any more chemo.  She seemed very positive about everything and reassured me, and said to not let this MRI worry me.  I’ll try to obey.  MRI is around the 10th.  She also ordered a pet scan, just to revisit the rib area where there was some question.  She said our type of health insurance is known for being very stubborn and not approving of pet scans, so she was not very positive that they would approve it, but wanted to try anyway.  If they say no, we will do another bone scan and compare the results to the one before.  I’m already dreading the scans..I don’t like scans.  At all.  Ick.

Hmm, what else…

Surgery target date is the week after Christmas–double mastectomy with lymph node dissection–we won’t have a specific date until I meet with the surgeon, nurse is mailing me the consultation date…

Last chemo is this coming Monday–THAT IS SO EXCITING!!  I feel so blessed that there won’t be any more sessions added on (at least we are pretty sure, MRI/PET scan will tell us for sure) Praise God for tumor shrinkage!!

Doc said she will not know about radiation until after surgery.  It all depends on things like margins, how many lymph nodes (if any) etc.
Radiation scares me (not actually getting it done, but long term effects).  I hope that it will be clear that it is NOT needed!

I will be meeting with a plastic surgeon to talk about type of reconstruction.  There are a few different options, but being as thin as I am, I don’t know if I would qualify for using my own tissue (they take it from stomach or back flank area).  It is looking like implants may be for me!  I DID gain about 4 pound these last 3 weeks, which made me quite proud:)  I have been paranoid about getting too thin through all of this chemo stuff.  My church has done a great job of keeping me fed with regular meals.  So thankful.

Oh my goodness I feel like I’m just jumping from one thing to the next, I hope this is making some sense!  I’m hungry and ready for dinner so I’m rushing!!

I guess that is it for now.  If you have any questions you can ask me in the guestbook section.  I think I covered everything we talked about…I think.  

I’ll end with a prayer request.I have a cold that kickin’ me! It makes me really tired!  It is throat, nose and chest.  No fever—yay—but I really would like to be well by Monday chemo.  I do feel like it is movin’ through pretty fast, this is day 3 and I feel better than I did last night.  My girl had it last week, guess I shouldn’t have kissed on her so much…

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  • Life Goes On
    December 1, 2010 at 2:09 am

    Hi first time here. My thoughts and prayers are and will be with you. I am 5 years cancer free with having lumpectomy and radiation. Love your postive thoughts . It is not easy always is it. Just keep thanking God that your body is being healed every day. Kisses to the family. Grace

  • Carolicia
    November 29, 2010 at 11:34 pm

    Hello, Amy!

    I write you from Europe. I love your blog. All my prays are for you and your family and I hope you´ll be fine soon.


  • Cathy M~(checkitoff)
    November 19, 2010 at 2:42 am

    Will continue to pray for you & your family. This is very good news! I think a pot of homemade chicken noodle soup will kick that cold! keep kissing those girls! many hugs, Cathy

  • Why Not Sew?
    November 18, 2010 at 6:15 pm

    Hi Amy-
    I am so glad about your good news. I’ll be praying for your cold and surgery.

  • stefanie
    November 18, 2010 at 5:25 am

    i AM SOOOOOOO Happy for you!!! hope you just keep getting great news!!!!

  • Theresa
    November 18, 2010 at 11:12 am

    Wonderful news! Kick that colds butt and stay strong! you and yours will continue to be prayed for over here. Theresa xoxo

  • Sarah
    November 18, 2010 at 4:38 am

    It’s great that you got some good news. Hang in there and I know you already know but your in my prayers! I am curious as to how the girls and your husband are handling everything? I know it has to be hard but you all seem so strong.

  • Page
    November 18, 2010 at 3:17 am

    Wow Amy…so thankful for the good news! It is inspirational to read the fire in your heart even through this attack on your body. You are amazing. I will be praying for you and the scans you are dreading…that God would give you peace and that the results would be very clear! And praying you would heal quickly from the cold!

  • simone17
    November 18, 2010 at 2:53 am

    I am still keeping you in my prayers Amy and am thinking off you, online and offline. You are a true champion how you handle all this!

  • Sawdust and Paperscraps
    November 18, 2010 at 4:32 am

    Sounds like you are positive and things are looking good for you. Hope the good news continues.

  • Angie
    November 18, 2010 at 2:55 am

    So glad to hear the good news! Hoping for more good news to come and will continue to pray for you and your family!!!

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