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Cancer Journey/ HEALTH

Last Radiation Treatment Today!!

Today is radiation treatment number 28–my last! 

 If you read my Caring Bridge journal, this will be old news.  If not, my latest posts have been on radiation treatments, adjusting to the hormone therapy that I have to take for 5 years, and having to say goodbye to a medication that I have been on for awhile, and at times, miss! 
 I also have grown some hair, bleached it, and “wore it out in public” as my girls say.:)
{sorry about the cut off face.  I was cheek to cheek with my youngest and I don’t post pics of the kids on my blog:)}
My latest journal post is below.  I am celebrating, but in a reserved sort of way. 
 I look back on the last 7 months and I am so very thankful to be here!  
I still have a little ways to go, and as you will be able to tell from my post below, some emotional baggage to attend to, but that is nothing new for me:) LOL.
Thank you.
Thank you for reading, for being so caring and willing to stick with me!
Wow-iee am I TIRED!

Zapped of energy, especially in the evenings.

I also have noticed as of last night that I just can’t get warm, it almost feels like I have a fever, but I don’t.  Some other ladies I know who had radiation talked about feeling this way toward the end. Last night it took my winter pj’s, my big thick robe, and two comforters covering me to finally get warm. Our cold, gloomy weather has not helped!!  

Tomorrow is my LAST DAY of radiation! 


I am so very thankful to have come so far, and I am especially thankful that you have all come with me..your encouragement has meant the world.

I am surprised at my mixed emotions about it all.


I have to be honest and tell you that I am adjusting to and pondering it all.  I can’t verbalize it well, but I feel like there is something keeping me from being super excited.  

I am excited and so thankful that the big treatments are over, Chemo, Surgery, and Radiation…so thankful…but I am still adjusting to the ongoing process of having had cancer. 

As my fellow fighter/survivor friend, Gina, said, 

Despite the hype of October awareness campaigns, “cure” is a misnomer.  There is no cure for breast cancer, only a slowly-decreasing risk of recurrence.”


She so beautifully put what is a huge frustration for me…I want to be told I am cured.  Instead, as fighters, we are left with the reality of an ongoing battle, with on- going scans and on-going smaller treatments and follow ups forever.  With no black and whites.  Only statistics and percentages. I even hesitated to write “having had cancer”  I think “is it had or have?”  We will never get the answers we want.  We do not know if there were more positive lymph nodes left behind.  We do not know if the cells that are left behind will behave and self destruct or grow into little colonies called tumors.

I have a hard time trusting scans. They tell me there is no cancer, then after surgery my path results show cancer.  Scans are not perfect, and cancer has to be a certain size to show up on them.

I also have history of getting good news and then the floor drops out, so I wonder if my lack of excitement has to do with that.  I’ll talk to my therapist about that one..:)

I know I have scans coming up, and a couple more minor surgeries, so these also add to the feeling of “I’m done but not quite” 

Am I making any sense??  I apologize if this is negative, I truly am thankful, but want to keep it real.

So, I am going to celebrate the finishing of the big Treatments–it is huge that they are done and I am so thankful that “God has brought me thus far!”  That is amazing.  

But,
if I am not jumping up and down when congratulated, just know there is more to the journey and celebration will come slowly for me.  I have a feeling my celebration will come in small moments, in the moments I feel so thankful to be here, the precious, everyday moments.

OR

 Who knows, I may surprise you and jump up and down and do a celebratory jig when I get my energy back:P


 Trust in the LORD with all your heart and lean not on your own understanding Proverbs 3:5


 

Cancer Journey/ HEALTH

Celebrating With My Friend

{I want a hat like that!}
Meet my sweet friend, Amanda.
She, too, is fighting breast cancer and today was her last day of radiation treatment!! 
Yay!
I have never met her in person, but I have grown to love her deeply and I’m so thankful for her friendship to me!  She has been such an encouragement to me, she knows exactly what to say and when to say it whenever we talk.  She. Just. Knows.
{Amanda & John on their wedding night. They are newlyweds:-)}
{before diagnosis}
What has struck me most deeply about Amanda is her fearlessness.  Even when she admits fear, it is followed by faith that stomps fear.  She has given me perspective and helped me in my battle with fear.
{Her husband shaved his head with her.:)}
We “met” in the coolest way.  
My friend, Sharon, who came to take care of me after my mastectomy, was on her way home from the Chicago airport after being here with me for a week.  She and her husband, Porter decided to stop at a restaurant for a bite to eat.  My Sharon friend noticed a “girl with a really cute hat”and her husband, sitting across the restaurant, and knew that she, too, was in a battle for her life.  After being with me for a week, she had eyes to see another who was battling.  She told her husband and they decided that they wanted to pay for their meal.  On their way out, they introduced themselves and that is how two fighters, Amanda and I, were connected.  I AM SO GRATEFUL FOR THAT CHANCE MEETING.  I know God had a huge part in that, which makes me extra thankful.
When my friend, Sharon, got home, she called me and told me of her chance meeting.  She was tearful and touched, and I smiled knowing that Amanda had to have been blessed that night by meeting my awesome friends, Sharon and Porter.  Sharon said the opposite was true, they were the ones blessed.
{Just last week.  We are sportin’ the same hairdo, haircolor, and pink radiation chest burns!}
I found Amanda on Caring Bridge and Facebook, and was immediately touched by her story. 
I couldn’t believe how similar our stories were:
~We were both told by DOCTORS that the lumps we felt were nothing to worry about.
~We are both in our 30’s.  (She 30, I am 34)
~We were diagnosed within days of each other.
~We were both Stage 3.
~We both found out AFTER our surgery that it was Lobular, not Ductal.
~We both had positive lymph nodes.
~We both had mastectomies within a week of each other.
~We both were waiting to start radiation.
There were also differences
On top of everything else, Amanda and her husband, John has had to suffer a miscarriage that happened within days of her diagnosis, and the knowledge that conceiving a child may not happen for them, due to medication that she has to take for her cancer.  She has had to grieve that on top of everything else.  My heart goes out to my dear, strong, brave friend.  They had just received this news the night they were sitting there at the restaurant, the night our connection was made.  
Thinking about this makes my heart just ache.
But..
Today we are CELEBRATING! 
Amanda has made it through her radiation.

She had a few more sessions than I had to have, and her skin has paid for it, so please pray for quick healing.  Please pray for her entire body, that this cancer will never, ever return.
Below is from Amanda’s Caring Bridge site, it is what SHE is praying, and I know she would be so grateful if you would join your prayers with hers..

From Amanda’s Caring Bridge journal: 

  I pray everyday to give me more time here on earth with my friends and family.  I pray to allow me to wake each morning to see another beautiful day he has created.  I pray to grow old with my loving husband.  I pray to see my sisters get older and graduate and one day marry (not that I’m rushing that one).  I pray to be cured from this horrible disease that has affected so many people I love and grown to have a relationship with.  I pray that one day this will all be a bad dream, but grow so much stronger from this (I know I will never forget this, this has made me who I am) I pray that one day that I can live my life somewhat normally without the BIG C hanging over my head. I pray that one day I will have a family of my own and be called Mommy. Out of all these things I have mentioned I pray that whatever God’s will be done, not mine.  I want whatever God has in store for me next, because he knows what is best for me.  

 ———————–
 I will leave you with one more thing that Amanda wrote that I just loved.  She ended her latest journal with a thank you to her husband.  I think they are just the cutest together, and I love what she had to say about him…
———————— 
{aww..}
From Amanda’s Caring Bridge Journal:

 I know my husband does not read my journals, but I want everyone that reads to know, I would not be where I am today without my husband or God…he is the most amazing man that anyone could ever ask for, I love him dearly and I’m so grateful that he really does love me unconditionally.  I have heard stories of men that have left there wife’s during treatment, because A.) They couldn’t handle it (they couldn’t!! imagine what the one ACTUALLY going through it feels like!!) or B.) They just didn’t want to deal with all the stress and headache “CANCER” deals with.  It definitely has it’s ups and downs, but John always says, “We have to do what we have to” we really have no choice in the matter.  So thank you to all those husbands out there, that really mean…In sickness and in health, cause John did! 

HOME/ Homemaking/ Natural Products

How I Cleaned My Favorite Vacuum

Sometimes I get an idea to write a post and think, “do people REALLY want to read about this?”  But then, I think about what motivates and inspires me when reading other blogs, and sometimes it is the most simple posts (like this one on cleaning baseboards from Simple Notebook) that get me movin’!

So today, I thought I’d share with you how I cleaned my favorite vacuum.
Over a year ago, I purchased an Electrolux ErgoRapido Bagless Cordless Handheld/Stick Vacuum.  It was lust at first site and love at first use.  I looked for awhile on the internet for the perfect stick vacuum, and decided on a Electrolux because:
~I wanted something for my hardwood and tile floors, not just carpet
~I wanted cordless
~I wanted lightweight
~I wanted sleek and pretty
~I wanted one that would hold its charge for long periods of time
~I wanted one with power!
~I wanted one easy to use for lil’ ones hands, so vacuuming could go on the chore board
~I wanted something with attachment options to get into the corners
~I wanted one that had a detachable hand held vacuum
The Electrolux had all of these things!


{It comes in ORANGE, too!! Love.}

Here was the problem.  
I am a hairstylist.  Before my cancer diagnosis, I did quite a few haircuts for family and friends.  Because of this, hair entered my house.  My little vacuum was perfect for this, BUT, after using for a year, long pieces of hair had gotten wrapped around the wheels, and they no longer rolled!
Most “normal”:) people would deal with that right away, but as we all know I am a procrastinator, so we have only been using the handheld part of the vacuum now for almost 6 months!  
I know, that is ridiculous.
But…
I finally did it!  I cleaned the nasty hair off the wheels
1. I emptied and rinsed the lint basket
2. I spray and wiped all external parts
3.  I used the small screwdrivers to pop the wheels right off.  No unscrewing necessary!
4. I used tweezers to pull the hair off the wheels.
5. I let all dry 
and now
I am love again!!
I’m also wondering WHY IN THE WORLD DO I WAIT SO LONG TO DO SUCH A SMALL TASK?  
It really was easy, took all of 10 minutes..
*if you use any of the links above to purchase anything from Amazon, I will receive a small commission, without any extra charge from you.  

I so appreciate it, if you are an Amazon shopper, 
when you use any of the links in this blog that take you to Amazon.  
I am so grateful!
**UPDATE  This vacuum would not be my first choice for lots of carpet areas that need heavy duty type vacuuming.  It is STICK vacuum, great for hard floors and to quickly touch up areas in between heavy duty vacuuming.
Cancer Journey/ HEALTH/ Music Renews

Laura Story – Blessings


Laura Story “Blessings”
{you will have to click on video, twice to play}
I’m contemplating this song today.
It has been another hard day.  I’m just not feeling like myself, at all.  
I’m adjusting to a new medication, one that messes with hormones 
and causes any rogue cancer cells to commit suicide.  
Today it is causing hot flashes and and a down mood and head.
I did have a very “normal” feeling day yesterday, which was day 2 on the medication.  That was really nice.
I had one person describe this medication as “puberty in reverse.”  
Fun times.

My heart is also heavy for Japan.
The images are just unreal and hard to imagine that it is reality.
Such suffering is so hard to see, and I am reminded, as the song says below,
that “This is not our home.”

Songs like this help give me perspective, and lift my heart and lift my head.

We pray for blessings
We pray for peace
Comfort for family, protection while we sleep
We pray for healing, for prosperity
We pray for Your mighty hand to ease our suffering
All the while, You hear each spoken need
Yet love is way too much to give us lesser things

‘Cause what if your blessings come through raindrops
What if Your healing comes through tears
What if a thousand sleepless nights are what it takes to know You’re near
What if trials of this life are Your mercies in disguise

We pray for wisdom
Your voice to hear
We cry in anger when we cannot feel You near
We doubt your goodness, we doubt your love
As if every promise from Your Word is not enough
All the while, You hear each desperate plea
And long that we’d have faith to believe

When friends betray us
When darkness seems to win
We know that pain reminds this heart
That this is not our home

What if my greatest disappointments
Or the aching of this life
Is the revealing of a greater thirst this world can’t satisfy
What if trials of this life
The rain, the storms, the hardest nights
Are your mercies in disguise

Cancer Journey/ HEALTH/ Love/ Music Renews/ Spiritual

Being Held

I’ve had an influx of subscribers lately, so I thought I would start this by filling you all in a bit on where I am at in my cancer journey.

Here is a timeline:
Aug 2010-diagnosis: Stage 3 Invasive Ductal/Lobular Carcinoma
Sept 2010-port surgery
Sept-Nov 2010- chemotherapy
Dec 2010 -mastectomy + reconstruction
Feb 2011-Radiation –28 rounds
TODAY- round 13, halfway done with radiation!!
May 2011-“phase 2” of reconstruction
June 2011- tattoo time (read more here..)

For details of the journey, click here or on the Caring Bridge button in the sidebar.

I have come far.  I have so much to be thankful for.  There are many ups and downs.  Today was a down, I write about it below… but I’ll get back up there.
——————————————————-

{Halfway radiation point & “down” isn’t my best look..but I do like my  new hat that looks old:)}

Journal

I was late for radiation today.

It was a hard morning…I just could not pull myself together in time.

My radiation therapist, Mr. Brad, was so kind, reassuring me that they can be flexible, and that it was ok.

I told him a bit of my hard morning, he listened and said he would pray.

Then, I told him, with tears flooding,

“I am weary”

He looked straight into my brewing storm and without hesitation, said:

 “but the Lord isn’t”

 

A nugget of truth that shot straight to my heart and immediately brought internal storm rest.  I exhaled and went on to face my day.

Oh Truth, sweet truth

From the written Word and the words of His people!

What would I do without Truth?

Truth has been harder to feel lately.

I KNOW truth, I SEE it, but it FEELS far away.

Lots of “static” in the way.

Busyness of thought that creates distance from grasping the feeling of truth.

I know I create some of that static, and I know that giving up a medication and adjusting to that give up creates static.  I also know some of it is just life right now.

It. Just. Is.

This said static got the best of me this morning–it was oh, so loud–it comes and I kick and fit and shake my fists.  Eyes up, head down, at times– in hands.  Tissue thrown in piles on floor.

I blurt my static…to Him.  To husband.  To my Carma friend.

Words of “whys” and “no’s” and fears and questions and closed hands and fed ups..my words.

“But Lord…”

“No Lord…”

“Enough Lord..”

Vivid dreams have turned from normal into nightmares.  Can I just have one day of my life before?  I don’t want this unknown anymore.  I want concrete, expected, easy.  I want pretty, no scars.

Lord, do you see?

My Lottie-3 -year- old- Mae, the bravest fighter, her mother torn from baby sister to seek treatment far away.  Leukemia in a child is enough, Lord, enough.  But..bacteria infection and pneumonia, too?  Families who love and yearn, torn from each others presence? It seems too much..

Lord, do you see?

The man after me, there for radiation therapy.  The only color in his face are blood shot eyes that are hollow, but still smile at me.

Lord?

My husband, who deals with enough by dealing with me. He is sitting at table, deep in thought, while shuffling the mounting bill piles, doing his best to make them all fit.

Lord.

The statistics they scare me, why can’t I have a concrete answer?  Please?  Stage 3a or Stage 3b? Which one is it?  It matters to me.. 70% or 39%?  Why can’t I let go of the numbers? Hands grasped, closed tight.  Digits grasping digits.

Oh Lord, and these women…

These dear, strong, fighting women.

Stacy, Nancy, Amanda, Stacia, Veronica, Elaine, Connie,  Gina, Michelle, Heather, Monique, Jill

Women who have felt lumps, endured scans, had parts of themselves cut on and cut out, allowed chemical chemo to flow through veins and radiation to burn both good and bad cells, who felt razors and cold air on scalp, have to take pills that keep wombs empty and all the while are wives and some mothers and burden bearers for each other.  Oh Lord, these women!

 Lord, do you see?

So. Much. Static.

The above is enough there is so much more.  Unnamed more.

Lord?…?

Then.. my Lord…
My GOOD, good, God…
He whispers to me.

“Yes, Amy, I see.”

 

“I know you are weary, but I am not.”

 

I SEE.  I, too, wept. 

I KNOW.  I, too, have scars.

 

I can handle your cries to me, My child.

I’m so glad you’ve come to me… 

For I am the Way.  The Truth. The Light.

 

I will make sense of tragedy.

I will be your burden bearer.  

Hand over the load. I was meant to bear it, not you.

 

Endure, child.

 

You know on this earth there will be pain and trials.

It was not meant to be this way, but it is.  

I will fulfill my promise to make it all right again, in my time.

 

This is what it is in an imperfect, sin- infested world.  

This is why I sent my Son, for a way out of it all.

 

You’ve tasted the hand of bitterness, do not let hatred numb your sorrows.  
Do not clinch your hand closed tight.



The wise hand opens slowly, to lilies of the valley and tomorrow…to Me!

 

I gave you the words to this song in your heart.

I gave you these words years ago, knowing you would need them in these fist shaking moments.

“This is what it means to be held, how it feels..

When the sacred is torn from life and you survive

This is what it is, to be held, and to know that the promise was 

when everything fell, you’d be held.”

I am holding you.

I have not promised a pain free world and life.  

But, I have promised that I AM Life, the Way, 

and I will be holding you every step.

These are God’s whispers to me.

 

I listen.

I search Youtube and find that song.


Natalie Grant

I listen again.

The static volume lowers to just a whisper and I find truth–and I am held.

{Words To Natalie Grant’s “Held”}

Two months is too little
They let him go
They had no sudden healing
To think that providence
Would take a child from his mother
While she prays, is appalling
Who told us we’d be rescued
What has changed and
Why should we be saved from nightmares
Were asking why this happens to us
Who have died to live, it’s unfair

This is what it means to be held
How it feels, when the sacred is torn from your life
And you survive
This is what it is to be loved and to know
That the promise was that when everything fell
We’d be held

This hand is bitterness
We want to taste it and
Let the hatred numb our sorrows
The wise hand opens slowly
To lilies of the valley and tomorrow
This is what it means to be held
How it feels, when the sacred is torn from your life
And you survive
This is what it is to be loved and to know
That the promise was that when everything fell
We’d be held
If hope if born of suffering
If this is only the beginning
Can we not wait, for one hour
Watching for our Savior

This is what it means to be held
How it feels, when the sacred is torn from your life
And you survive
This is what it is to be loved and to know
That the promise was that when everything fell
We’d be held

 

HOME/ Natural Products/ Organizing

Spring Cleaning & Declutter With Clean Mama

You all know I am a big fan of Clean Mama.  The look of her blog makes me very happy, she gives away many free printables, and she’s a midwest girl, like me!!  
She is doing a “Clean Sweep” spring clean + declutter.  
A month of spring cleaning and decluttering at your own pace
Last year, she hosted a Spring Zone Cleaning, which was awesome!  This year is going to be a bit more laid back, with just a “couple suggestions to work in at your leisure”–I like the sound of that.  I need laid back this year, and I also need some motivation to focus in on some specific things.  
I am REALLY looking forward to getting something done around here-won’t you join us?  
If interested, just visit Clean Mama to receive the assignment for each week during March. I am excited about this weeks assignment, my closet has been moaning at me for awhile now! I will let you know how I am coming on my progress, and would love to hear from you if you decide to join in.
When you go visit, let her know you came from New Nostalgia and that Amy says “Hi!”

Music Renews/ Spiritual

When I Leave


When I Leave” JJ Heller

Am I too busy chasing a temporary fortune
That my priorities get lost along the road
The seasons bring their moments
They linger for an instant
They never wait for you to pay the debts you owe

When I leave I want to leave a memory filled with love
The kind you don’t forget
When I go I want to be known
As one who lived with no regrets

If life is like a flower
Am I doing all that’s in my power
To leave a fragrance behind
It’s time to count my blessings
Forget about my savings account for a while

I want them to say
What a glorious day
She had so much to gain
But she gave it away
And I want them to see something different in me
And that I’m going to be free

Some glad morning when this life is over
I’ll fly away
To a home on God’s celestial shore
I’ll fly away
When I leave I want to leave a memory…

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