I pray everyday to give me more time here on earth with my friends and family. I pray to allow me to wake each morning to see another beautiful day he has created. I pray to grow old with my loving husband. I pray to see my sisters get older and graduate and one day marry (not that I’m rushing that one). I pray to be cured from this horrible disease that has affected so many people I love and grown to have a relationship with. I pray that one day this will all be a bad dream, but grow so much stronger from this (I know I will never forget this, this has made me who I am) I pray that one day that I can live my life somewhat normally without the BIG C hanging over my head. I pray that one day I will have a family of my own and be called Mommy. Out of all these things I have mentioned I pray that whatever God’s will be done, not mine. I want whatever God has in store for me next, because he knows what is best for me.
I know my husband does not read my journals, but I want everyone that reads to know, I would not be where I am today without my husband or God…he is the most amazing man that anyone could ever ask for, I love him dearly and I’m so grateful that he really does love me unconditionally. I have heard stories of men that have left there wife’s during treatment, because A.) They couldn’t handle it (they couldn’t!! imagine what the one ACTUALLY going through it feels like!!) or B.) They just didn’t want to deal with all the stress and headache “CANCER” deals with. It definitely has it’s ups and downs, but John always says, “We have to do what we have to” we really have no choice in the matter. So thank you to all those husbands out there, that really mean…In sickness and in health, cause John did!
Sometimes I get an idea to write a post and think, “do people REALLY want to read about this?” But then, I think about what motivates and inspires me when reading other blogs, and sometimes it is the most simple posts (like this one on cleaning baseboards from Simple Notebook) that get me movin’!
My heart is also heavy for Japan.
The images are just unreal and hard to imagine that it is reality.
Such suffering is so hard to see, and I am reminded, as the song says below,
that “This is not our home.”
We pray for blessings
We pray for peace
Comfort for family, protection while we sleep
We pray for healing, for prosperity
We pray for Your mighty hand to ease our suffering
All the while, You hear each spoken need
Yet love is way too much to give us lesser things
‘Cause what if your blessings come through raindrops
What if Your healing comes through tears
What if a thousand sleepless nights are what it takes to know You’re near
What if trials of this life are Your mercies in disguise
We pray for wisdom
Your voice to hear
We cry in anger when we cannot feel You near
We doubt your goodness, we doubt your love
As if every promise from Your Word is not enough
All the while, You hear each desperate plea
And long that we’d have faith to believe
When friends betray us
When darkness seems to win
We know that pain reminds this heart
That this is not our home
What if my greatest disappointments
Or the aching of this life
Is the revealing of a greater thirst this world can’t satisfy
What if trials of this life
The rain, the storms, the hardest nights
Are your mercies in disguise
I’ve had an influx of subscribers lately, so I thought I would start this by filling you all in a bit on where I am at in my cancer journey.
Here is a timeline:
Aug 2010-diagnosis: Stage 3 Invasive Ductal/Lobular Carcinoma
Sept 2010-port surgery
Sept-Nov 2010- chemotherapy
Dec 2010 -mastectomy + reconstruction
Feb 2011-Radiation –28 rounds
TODAY- round 13, halfway done with radiation!!
May 2011-“phase 2” of reconstruction
June 2011- tattoo time (read more here..)
For details of the journey, click here or on the Caring Bridge button in the sidebar.
I have come far. I have so much to be thankful for. There are many ups and downs. Today was a down, I write about it below… but I’ll get back up there.
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{Halfway radiation point & “down” isn’t my best look..but I do like my new hat that looks old:)}
Journal
I was late for radiation today.
It was a hard morning…I just could not pull myself together in time.
My radiation therapist, Mr. Brad, was so kind, reassuring me that they can be flexible, and that it was ok.
I told him a bit of my hard morning, he listened and said he would pray.
Then, I told him, with tears flooding,
He looked straight into my brewing storm and without hesitation, said:
A nugget of truth that shot straight to my heart and immediately brought internal storm rest. I exhaled and went on to face my day.
Oh Truth, sweet truth
From the written Word and the words of His people!
What would I do without Truth?
Truth has been harder to feel lately.
I KNOW truth, I SEE it, but it FEELS far away.
Lots of “static” in the way.
Busyness of thought that creates distance from grasping the feeling of truth.
I know I create some of that static, and I know that giving up a medication and adjusting to that give up creates static. I also know some of it is just life right now.
It. Just. Is.
This said static got the best of me this morning–it was oh, so loud–it comes and I kick and fit and shake my fists. Eyes up, head down, at times– in hands. Tissue thrown in piles on floor.
I blurt my static…to Him. To husband. To my Carma friend.
Words of “whys” and “no’s” and fears and questions and closed hands and fed ups..my words.
“But Lord…”
“No Lord…”
“Enough Lord..”
Vivid dreams have turned from normal into nightmares. Can I just have one day of my life before? I don’t want this unknown anymore. I want concrete, expected, easy. I want pretty, no scars.
Lord, do you see?
My Lottie-3 -year- old- Mae, the bravest fighter, her mother torn from baby sister to seek treatment far away. Leukemia in a child is enough, Lord, enough. But..bacteria infection and pneumonia, too? Families who love and yearn, torn from each others presence? It seems too much..
Lord, do you see?
The man after me, there for radiation therapy. The only color in his face are blood shot eyes that are hollow, but still smile at me.
Lord?
My husband, who deals with enough by dealing with me. He is sitting at table, deep in thought, while shuffling the mounting bill piles, doing his best to make them all fit.
Lord.
The statistics they scare me, why can’t I have a concrete answer? Please? Stage 3a or Stage 3b? Which one is it? It matters to me.. 70% or 39%? Why can’t I let go of the numbers? Hands grasped, closed tight. Digits grasping digits.
These dear, strong, fighting women.
Stacy, Nancy, Amanda, Stacia, Veronica, Elaine, Connie, Gina, Michelle, Heather, Monique, Jill
Women who have felt lumps, endured scans, had parts of themselves cut on and cut out, allowed chemical chemo to flow through veins and radiation to burn both good and bad cells, who felt razors and cold air on scalp, have to take pills that keep wombs empty and all the while are wives and some mothers and burden bearers for each other. Oh Lord, these women!
Lord, do you see?
So. Much. Static.
The above is enough there is so much more. Unnamed more.
Lord?…?
“Yes, Amy, I see.”
“I know you are weary, but I am not.”
I SEE. I, too, wept.
I KNOW. I, too, have scars.
I can handle your cries to me, My child.
I’m so glad you’ve come to me…
For I am the Way. The Truth. The Light.
I will make sense of tragedy.
I will be your burden bearer.
Hand over the load. I was meant to bear it, not you.
Endure, child.
You know on this earth there will be pain and trials.
It was not meant to be this way, but it is.
I will fulfill my promise to make it all right again, in my time.
This is what it is in an imperfect, sin- infested world.
This is why I sent my Son, for a way out of it all.
I gave you the words to this song in your heart.
I gave you these words years ago, knowing you would need them in these fist shaking moments.
“This is what it means to be held, how it feels..
When the sacred is torn from life and you survive
This is what it is, to be held, and to know that the promise was
when everything fell, you’d be held.”
I am holding you.
I have not promised a pain free world and life.
But, I have promised that I AM Life, the Way,
and I will be holding you every step.
These are God’s whispers to me.
I listen.
I search Youtube and find that song.
I listen again.
The static volume lowers to just a whisper and I find truth–and I am held.
{Words To Natalie Grant’s “Held”}
Two months is too little
They let him go
They had no sudden healing
To think that providence
Would take a child from his mother
While she prays, is appalling
Who told us we’d be rescued
What has changed and
Why should we be saved from nightmares
Were asking why this happens to us
Who have died to live, it’s unfair
This is what it means to be held
How it feels, when the sacred is torn from your life
And you survive
This is what it is to be loved and to know
That the promise was that when everything fell
We’d be held
This hand is bitterness
We want to taste it and
Let the hatred numb our sorrows
The wise hand opens slowly
To lilies of the valley and tomorrow
This is what it means to be held
How it feels, when the sacred is torn from your life
And you survive
This is what it is to be loved and to know
That the promise was that when everything fell
We’d be held
If hope if born of suffering
If this is only the beginning
Can we not wait, for one hour
Watching for our Savior
This is what it means to be held
How it feels, when the sacred is torn from your life
And you survive
This is what it is to be loved and to know
That the promise was that when everything fell
We’d be held
“When I Leave” JJ Heller
Am I too busy chasing a temporary fortune
That my priorities get lost along the road
The seasons bring their moments
They linger for an instant
They never wait for you to pay the debts you owe
When I leave I want to leave a memory filled with love
The kind you don’t forget
When I go I want to be known
As one who lived with no regrets
If life is like a flower
Am I doing all that’s in my power
To leave a fragrance behind
It’s time to count my blessings
Forget about my savings account for a while
I want them to say
What a glorious day
She had so much to gain
But she gave it away
And I want them to see something different in me
And that I’m going to be free
Some glad morning when this life is over
I’ll fly away
To a home on God’s celestial shore
I’ll fly away
When I leave I want to leave a memory…