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Cancer Journey/ HEALTH

MRI Monday!

MRI

Today is finally MRI Monday!  I have been waiting a couple weeks for this so I am so glad it is here.  I thought it would be appropriate to repost what thoughts go through my brain during MRI’s.  I’m in a better emotional place, so I think it will be much easier this time.  Re-reading the post below reminds me of what to expect and prepares me. 


Appointment is at 3:00 & results will be in about 3-4 days. I will let you know as soon as I know!


{read this post to know what this is all about}
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Below are thoughts I wrote during the appointment of my MRI last December.  Some are deep, some are random, many are negative, some are inappropriate, all are real.
~I don’t want to be here, I don’t like this place today.  I wonder if Jay already went home?
~ Amy, change your thought patterns.  If it were not for this place, you never would have met the amazing people you have, they would not be in your life. This place and those people have helped bring the healing.
~ 6:00 p.m. appointment. Yep. I’m the last of the day, it is deserted up in here!
~ Check in lady makes a funny about having my information memorized.  It is not funny, but I feel like I should smile at her anyway.
~ Oh look, another bracelet letting me know what my name is, I’ll add it to my collection. 
~ I don’t want to sit alone in this waiting room, this place I met my L girl. Stupid lump in my throat.  Her laugh, her smile.  I remember. 
~So many forms to fill, so much history. Write fast, get it done. 
~Tech is familiar, she has scanned me before. 
~Strip, change into hospital gown & pants.  The image in the mirror is kinda cute, I look like a little girl. Vulnerable. These pants swallow me.  I roll them at the waist.
~Crap, I forgot about the I.V. part. I am used to the pokes, but not.
~O.K.– that was not so bad, thank you lucky vein. 
~She comments on my thin, healthy blood.  They always do. Cancer patients usually have thick sticky blood. I would tell her it is from my juicing and green smoothies, but I don’t feel like talking, and she might think I am strange.
~ Hello, machine you are large and loud, and where you live is drafty and cold!
~ A sticker where the lump is, it looks like a cheerio.  I’m hungry. 
~Time to lay face down, should I turn my neck to the side or go face first?  I will try face first this time, last time killed my neck. 
~Arms above my head, get comfortable, Amy.  No moving for 20-30 minutes.
~She wraps the I.V. cord around my fingers to keep it out of the way, not too comfortable. 
~A button in my other hand, in case I need them.  I hope I don’t accidentally push it.  Relax your hand, Amy. Relax. 
~I am exposed, I wonder who is behind that one way glass wall? I did see a young guy, arrgh. 
~Tech helps me line up my chest. There are two holes I need to fit into.  They must make these for large people. Tech affirms my thoughts. 
~ I wonder what my new breasts look like, hanging through holes, to the people behind the glass.
~ Tech reaches to adjust, to line them up perfect.  How awkward.
~ I feel bad for large women, they must feel even more exposed hanging in such a way.
~ I wonder about the people who laid here today, who will tomorrow.  I will pray for them as I am scanned.
~ Brrrr…she is so kind to cover my cold arms and hands with towels. 
~ She leaves, I am alone, but not. 
~ She comes back, to stuff earplugs into my ears.  I then remember this is the loud machine.
~ Its noise at times sounds like an automatic machine gun, other times it just clicks.  Just as I am going to my happy place, it beeps and sounds like my alarm clock. When it is at rest, it makes a big air-y, rhythmic breathing sound.  It reminds me of hearing my baby’s heartbeats during ultrasounds, but much more intimidating and not so cute.  It breathes like it is alive.  I don’t like it.
~I ask God to protect my body from the radiation exposure this machine gives.
~ I start to worry about the accumulating affects of radiation. I often worry about this. Time to change my thought patterns again. 
~ Only about 10 minutes in, and I am regretting my face first decision.  All the weight of my head is balanced on my brow bone.  Are we done yet?
~Tech comes in and says we have to start over.  They must make sure they are getting the area of the sticker.  She feels me up again, adjusting.  But says to not move my upper body or head.  Crap.
~Within 10 more minutes, my head feels like a bowling ball.  I pretend I am in a competition on Survivor.  The challenges where they have to stick it out in very uncomfortable positions are my favorites.  I am a Survivor.
~I wait for the finale, when they inject my I.V. with contrast.  I can’t wait for that part, it will mean the test is over.
~Trying to go to my happy place, but can’t find it when it is so LOUD up in here!
~I start to think of the results of the test.  The What-if’s.  I think I should write a post called “Living in the What-If’s”
~So. Much. Pressure. On. My. Brow. Bone.  Trying to pretend I am at the masseuse, they use these kind of headrests..why are theirs so much more comfortable?  For the price of this test, this headpiece should be pillow soft and covered in velvet.
~Can’t wait to look in the mirror when this is over and see the dent in my brow bone.
~I finally, FINALLY feel cold moving through the I.V. tubing entwined in my fingers.  Up to my arm, into my lucky vein.  Cold. I taste metal. I  was warned.  I envision lighting up neon.  Can’t wait to detox.
~Tech comes in and apologises for the length of the test.  40 minutes.  I ask her if I have a dent in my head.  She laughs. 
~ She takes out the I.V.  It drips blood all over my pants.  I think it is such a pretty color and looks like art, but I don’t tell her, for she might think I’m strange.
~I go to change.  I feel lighter.  My face looks like I have been wearing a wrestling helmet. All red and splotchy, a bit dented. SO happy it is over.  
~I feel more stable emotionally, so I take a minute to sit where we sat, my L girl and I.  At that moment, my phone beeps, alerting me of a text.  I look, 3 pictures to make me smile, from my L girls family.  Her brother, trying on her wig, made me laugh which echoed in empty hospital.  Moments of fun between a brother and sister, smiles in the midst of tragedy. The last pic is just her, and her amazing smile.  
~I find mine through tears.  Time to head home.
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THANK YOU all so much for your notes of encouragement and especially for your prayers while I waited for this test.  

Cancer Journey/ HEALTH/ Music Renews/ Spiritual

It Is No Coincidence & A Health Update

It is no coincidence that as I drive away from the familiar building, my radio is set to 89.9.

It is no coincidence that as tears drop down my face, out- of- the- blue large rain drops, the biggest I’ve seen, shower my windshield.  I imagine God-sized tears.  I know He feels with me.

The sky is grey and I’m trying not to be.  I pass an retirement center & a sad longing enters.  I want to grow old.  “Lord, I want to grow old!”

It is no coincidence that as that whisper leaves my lips that another enters my brain. “I know the plans I have for you says the Lord.”

The rain is intense, making it hard to see.  Should I brace myself for a storm?  I’m surprised how fear has been replaced with sadness.  That is not a coincidence, for God and I have done much work on fear.  Sadness seems easier. Calmer.  A relief, but not.

I drive just a couple more blocks.  The rain stops as suddenly as it came on.

The song on the radio catches my attention–the word “beloved,” for it is what my name means.  I’ve always loved the meaning of my name.

I listen intently, the words soothe & prepare.  I find the melody and the same words running through my head the next day, in weak moments.  I realize the song was given as a gift, its perfect words not a coincidence. I am determine to receive it. I lift my eyes and open my hands.

Almost home now, my eyes keep lifting.  I am searching for the rainbow, for it is still raining but the sun is shining.  I don’t find one, but I’ve seen God’s promise before, so I will keep my eyes lifted. What I find will be no coincidence.

And now, I’m home.

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Health Update:

I went in for my ‘every 3 month’ checkup.  There is a thickening in the area that my tumor used to be.  Doc can also feel the same lymph node we have been watching.  Because I have had some burning sensations there (symptoms I presented with 2 years ago) and because my cancer margin was so close to the chest wall (1 mil.), she is going to be extra cautious with me.  The plan is to check it out with an MRI.  We need insurance to approve it first, so we won’t know anything for a week or two.

We are hoping it is just scar tissue.

I am doing fine with it. After my tears that I spoke of above, I really have felt ok and at peace.  Pretty used to this stuff, at least as used to it as I think I will get.  It is never comfortable, the wondering & ‘what-if’s’ but it is familiar and I’ve been through it before, and I have a great God who calls me Beloved!

Cancer Journey/ Easter/ HEALTH/ Love/ Spiritual

Indescribable Peace

In Christ Alone by Owl City

It was over 15 years ago, I was 21 years old, a newlywed.  I was sitting in church on Easter morning, terrified, with the question of “what if?” on my brain.

The day before, I received a phone call while at work, hairdressing.  I was drying my last client of the day, and I was called to the front for a phone call.

On the phone was my dermatologist, whom I had visited just a few days before.  “I’m sorry to have to tell you this over the phone, but you have skin cancer, and it is the kind that is not usually nice. Melanoma.  If we caught it in time, you will be fine.  If it is in the bloodstream already, your chances of beating it are very slim.

It was a very short phone call, I went back to drying my client’s hair, not sure how I was holding on to the hairdryer, as I felt numb all over.

I don’t remember much of that weekend, but I DO remember that it was Easter Sunday, and as I was sitting in church, the only thing I heard the Pastor say was..“you can experience the peace that passes all understanding when you know Jesus.”

Right as he said those words, a deep peace came over me.  Fear took a back seat, and I experienced for the first time what that verse meant.  It was such a sweet feeling.

 

That was early in my walk with God, and over the years I have grown in my knowledge of what it means to walk in peace and to trust in the plan He has for my life.

It has taken many, many lessons, and many screw ups on my part. God has proven over and over that He is worthy of my devotion, that He is good ALL the time, and that no matter what, He will never leave me.

My melanoma was caught in time, and surgery was enough to get rid of it.  I was thankful but so young.  I’m not sure I really got just how blessed I was that we caught it in time.

Fast forward 15 years.  As you all know, I had another cancer diagnosis last year.  Again, I felt the numbness that comes with that phone call.  This time I was much older, wiser, and there was so much more at stake.

I had a husband of 14 years whom I had grown to love so very much, who I desperately longed to grow old with, and  I had 3 little ones who would hurt deeply if anything happened to me.

These facts made peace hard to come by.  If you followed my journey on Caring Bridge, you know my emotions were so up and down and my peace and trust were tested all throughout my cancer fight.

Fear raged, but, I also experienced a peace and trust that I never thought was possible.  I fell very, very deep in love with my Jesus who has been by my side all these years.

I’ve always loved Him, ever since I was young, but oh the sweetness of Him that I experienced in this trial.  Beyond what words can describe.

 

So tomorrow, I find myself facing yet another Easter Sunday, where I will sit with the question of “what if?”  I have tests next week to check a spot on my kidney, and there is a possibility that cancer has visited me once again.

I have realized something this time, though.  Fear has lost its grip.

That doesn’t mean it won’t rear its ugly head at times, but it does not consume me, and I am FREE.  This trust I have found, it feels like rest, and that is what I am doing.

I am in His hands and I am at rest.  I no longer feel panicked when I think of my 3 precious girls and that question “what if?”

I realized this week, that I finally, FINALLY I have been able to go even deeper into my trust and give them to HIM.

I know that the amazing God who has loved me all through my years will have their little hearts and will take care of them, no matter what.

And that man of mine that I love so very much?  I know He has him, too.

I smiled and felt a chill when I realized this.  As the song says below, “no guilt in life, no fear of death, this is the power of Christ in me.”

This Easter is a special one.  I am remembering.  I am remembering how He chose death, so I can be free from the fear of death.  

He hung on that cross and took on my guilt, so I stand here free of guilt, despite how messed up I am.  He overcame death so that I can have eternal life, forever with Him.

Lyrics:

In Christ Alone, My Hope Is Found
He Is My Light, My Strength, My Song
This Cornerstone, This Solid Ground
Firm Through The Fiercest Drought And Storm
What Heights Of Love, What Depths Of Peace
When Fears Are Stilled, When Strivings Cease


My Comforter, My All-in-all
Here In The Love Of Christ, I Stand

There In The Ground His Body Lay
Light Of The World By Darkness Slain
Then Bursting Forth In Glorious Day
Up From The Grave He Rose Again
And As He Stands In Victory
Sin’s Curse Has Lost Its Grip On Me
For I Am His And He Is Mine
Bought With The Precious Blood Of Christ

No Guilt In Life, No Fear In Death
This Is The Power Of Christ In Me


From Life’s First Cry To Final Breath
Jesus Commands My Destiny


No Power Of Hell, No Scheme Of Man
Can Ever Pluck Me From His Hand
Till He Returns Or Calls Me Home
Here In The Power OfChrist

I’ll Stand
Till He Returns Or Calls Me Home
Here In The Power Of Christ

I’ll Stand
Here In The Power Of Christ

I’ll Stand

 

 

Cancer Journey/ HEALTH

A Health Update

Me and My Sweet Nephew That I Got To Visit Last Weekend!  
Last time I updated, I told you I was having pain, a gall bladder test, and a ct and bone scan for a suspicious spot on my kidney.  That was about a week ago.

The gallbladder test showed a very healthy gallbladder and liver.  Yay!

The pain I was feeling became lower and much more severe.  We spent the last few days trying to figure out what is causing it.  I had a pelvic ultrasound this morning and we think we found the culprit.  I am on a medication for 5 years that I have to take for cancer, but one of the side affects is ovarian cysts.  We have been watching my cysts closely, monthly.  Doc decided to go to every 3 months, as they were just kind of going up and down with my cycles and not causing me any pain.  Well, in those 3 months they decided to misbehave.  I have a new large cyst and it is bullying its way in there, causing all of the pain I have been having.  It is a harmless cyst, and will probably go down with my cycle, but in the meantime I have to figure out how to deal with the pain.  It is much less today.  I am so grateful!

Prayers for wisdom, please, as we decided what to do if it continues to be this painful each month.  There are several options, and it can get confusing, especially when my most trusted doctors have very different opinions on what should be done.

As for the CT and bone scan to check the spot on my kidney, I was all ready to get them this morning, but yesterday evening received a call from Doc saying my insurance company didn’t approve them yet.  It had already been a long week of waiting and wondering, so this news was hard to swallow.  We found out today they have approved, but I can’t get in until the end of next week.  Patience.

It did end up being ok, as my kids were home from school and I could spend some time with them instead of at the hospital all day getting my insides looked at. 🙂  That was a blessing.

I just wanted to update you all, I’m typing fast as my hubby is waiting for me to watch a bit of T.V. with him!  I love Friday nights!!  I hope this finds you all blessed on this very special Good Friday.

Cancer Journey/ HEALTH/ Music Renews/ Spiritual

Trusting

This song expresses my heart.
I’m experiencing deep trust this weekend.
My oncologist was in surgery all day Friday so we still have no plan of action.
I’m hanging on, being held, and not forgetting how good He is.
Cancer Journey/ HEALTH/ Music Renews/ Spiritual

Pain, Perspective, Peace & A Spot On My Kidney

I have had stomach pain, it started Monday night.  Woke me up in the night both Monday and Tuesday.  It was severe in the night, but during the day only bothered me slightly.  It did keep me from running, which frankly ticked me off, and got me to the doctor.  I was suspicious of gall bladder.

I had an ultrasound yesterday morning.  Yes, they think my gall bladder may not be working properly and want further testing. That is what is causing pain.

 But that is not why the doctor called me at the end of the day.

She called to let me know that there is a 1-2 centimeter spot on my kidney.  It showed up in an ultrasound that I had in January and was cyst-like, so we were told to watch it due to my history.  Well, it now looks more solid, a nodule or lesion.  They are not jumping to conclusions but because of the definite change from the ultrasound in January, the radiologist suggest further testing due to my history.

My primary care doctor is going to call my Oncologist for the “now what?”  I expect a scan or two, maybe a biopsy.  I will know more next week.

You have all so graciously come along on this journey with me, so I want to keep you informed. It seems like these “bumps in the road” may just be a way of life– these ups and downs with my health.  I am ok with that.  I have done my pouting in the past and have come to accept the ‘what is.’  I am at peace, and so thankful for how many prayers have been answered on my behalf.  So many.

I am also very thankful for the perspective that all of this brings.  It is a gift.  I find when pain forces me to face what we all need to face, that we are here on this earth for a short time, I live.  I REALLY live.

I see more clearly.  I think about what matters.  I notice beauty.  I touch and hug my kids more. I kiss my husband more (well, I would be if he didn’t have a cold :)) I treasure the moments with those I love.  I eat it all up, and I am present.  That, friends, is a gift, one that I would not have to this extent, if it were not for pain.

Emotional pain, physical pain, both bring perspective.
I reach out to my Heavenly Father in these moments, I rest in His love, and I find peace.

I will keep you updated.  Again, it very well could be nothing.  Hoping for the best!!

Cancer Journey/ HEALTH/ Music Renews/ Spiritual

Decluttering & Finding Chemo Memories

{notice how dark the valleys are, but without them there would be no mountaintop}

I’ve been cleaning out my gmail inbox, which was a complete nightmare!  It is slowly getting better as I file, label, delete and respond.  Such a great feeling!  I have come across some pretty precious emails, notes of encouragement from when I was sick, ones I read, but never filed away properly.  I have to make some sort of scrapbook out of all the amazing words I got from people. 

Even after all this time I am still amazed at how God put the perfect note, or song, or person in my life at all the right times to carry me through the hardest times.  He continues to do that, but I do find it is harder to see when I have the energy to be busy.  I am working on keeping eyes open to see.

I remember the below video.  I remember it was a couple days after chemo #2.  I was in such a fog that frankly scared me.  I couldn’t think clearly.  I couldn’t see clearly.  I couldn’t walk well.  I was weak & nauseous.  I remember sitting at the computer desk, staring at the screen, trying to make it focus.  


I had a file of songs on hand to play for those valley days, and hit the first one I could find.  It was the song below.  I remember laying my head on the desk, eyes blurred but not from tears, yet.  My head so heavy, my heart, too.  I listened to it 3 times at least, it was the perfect song for my heart that day. The desk became wet with my tears, but I was too weary to do much about it.  

My Caring Bridge Journal October 6, 2010:

I’m in the valley today. I am weak, sick and in the fog.  I woke up last night from at least 6 different dreams where I was telling people I only had months to live, different people each time.
 
As this linked video says, “I need a voice that is louder than mine” today.

By chemo #3, I figured out that lots of my “fogginess” was side affects from the type of nausea medication I was taking.  Once we changed that, it was so much better!

Back to cleaning out my email folders and inbox.  I found this short but powerful prayer from my mother in law, Kathy.  She sent it to me that same day, October 6, 2010.  It was perfect and just what I needed.
Dear Lord,
Hear Amy’s cry and give heed to her prayer. Her heart is faint and her body is weak.Lead her to you… the Rock that is higher than I. You are her refuge, her tower of strength. Let her find comfort in the shelter of Your wings.   Amen
from Psalm 61

I pray that if you are in your own valley today, that you too, would find His sweet grace, that His voice would be louder than yours, that you would find shelter in the wings of God!  He is the lifter of heads and the healer of hearts.  So often He has lifted my head and cradled my heart.  He takes our valleys and gives them meaning & purpose. He is a good, good God, one that we can turn to when we just can’t carry on ourselves.

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