I am on a walking trail
Ipod in ears–again.
Iced latte in hand-again!
I look for a bench to sit and write, I avoid the ones that are engraved and say “In Memoriam,” for they depress me further than I already am.
The only benches in the shade are these said benches, so I give in and sit on the shiny, cold marble that is carved with the name, “Marilyn, 1999.” Did she love this trail too? Did she walk when alive, drinking in the sounds of life? Did she walk it slow, weak and sick, feeling life fade? I wonder these things and I feel sad for Marilyn.
I take a walk today, to get some exercise, and to pray release some natural serotonin. Surprisingly, it helps.
How could it not? The 60- degree cool breeze, brings whiffs of spring flowering trees. These trees are the accessories of nature in the springtime, touches of purple, yellow, white and pink. God never over-accessorizes. He always gets it just right.
The sun shines but plays hide- and- seek behind large, white clouds. It is a bit annoying as I have to reach for the jacket tied around my waist, every time it stays hidden for too long. Annoying, but amusing, this hide-and-seek-game-playing with the sun.
This game I can’t control reminds me of life right now, and makes me think about how I am responding to things out of my control. Am I responding annoyed or amused? Truthfully, I have fallen into self pity. I am oozing discontentment as these annoyances come my way:
~painful joints that get “stuck” when I sit too long–chemo side effects
~a female cycle that brings 2 weeks of emotional struggle, more than an annoyance–a full- blown sting.
~fatigue. I pay for my walks, for at least 2-3 days after, I have little energy, needing naps and an early bedtime.
~right-side lower back pain. A dull ache. I wonder if it is the cyst on my ovary introducing itself to me.
I wonder how to change my response, to enter into the game and play nice. How to be sad without making everyone else around me sad, too?? How to play, and even how to fight with a submissive “yes” nod? Instead, I tense, fear and fight with a nodding, stubborn “no.”
I ponder these questions on my walk, as ipod pushes truth answers into my ears. I scroll through songs and come upon one that pushes through my swirling questions and thoughts, giving answers. Despite my dislike for the slight country twang, I listen to it three times…
It’s hard to shine in the shadows of the night
You can’t love if you don’t love yourself
There is hope when my faith runs out
It’s like the sun is shining when the rain is pouring down
It’s like my soul is flying though my feet are on the ground
So take this heart of mine there’s no doubt
I’m in better hands now
I am strong all because of you
I stand in awe of every mountain that you move
Oh I am changed, yesterday is gone
I am safe from this moment on
[
There’s no fear when the night comes ’round
I’m in better hands now
It’s like the sun is shining when the rain is pouring down
It’s like my soul is flying though my feet are on the ground
So take this heart of mine there’s no doubt
I’m in better hands now
It’s like the sun is shining when the rain is pouring down
It’s like my soul is flying though my feet are on the ground
It’s like the world is silent though I know it isn’t true
It’s like the breath of Jesus is right here in this room
So take this heart of mine there’s no doubt
I’m in better hands now
I’m in better hands now
I’ve had an influx of subscribers lately, so I thought I would start this by filling you all in a bit on where I am at in my cancer journey.
Here is a timeline:
Aug 2010-diagnosis: Stage 3 Invasive Ductal/Lobular Carcinoma
Sept 2010-port surgery
Sept-Nov 2010- chemotherapy
Dec 2010 -mastectomy + reconstruction
Feb 2011-Radiation –28 rounds
TODAY- round 13, halfway done with radiation!!
May 2011-“phase 2” of reconstruction
June 2011- tattoo time (read more here..)
For details of the journey, click here or on the Caring Bridge button in the sidebar.
I have come far. I have so much to be thankful for. There are many ups and downs. Today was a down, I write about it below… but I’ll get back up there.
——————————————————-
{Halfway radiation point & “down” isn’t my best look..but I do like my new hat that looks old:)}
Journal
I was late for radiation today.
It was a hard morning…I just could not pull myself together in time.
My radiation therapist, Mr. Brad, was so kind, reassuring me that they can be flexible, and that it was ok.
I told him a bit of my hard morning, he listened and said he would pray.
Then, I told him, with tears flooding,
He looked straight into my brewing storm and without hesitation, said:
A nugget of truth that shot straight to my heart and immediately brought internal storm rest. I exhaled and went on to face my day.
Oh Truth, sweet truth
From the written Word and the words of His people!
What would I do without Truth?
Truth has been harder to feel lately.
I KNOW truth, I SEE it, but it FEELS far away.
Lots of “static” in the way.
Busyness of thought that creates distance from grasping the feeling of truth.
I know I create some of that static, and I know that giving up a medication and adjusting to that give up creates static. I also know some of it is just life right now.
It. Just. Is.
This said static got the best of me this morning–it was oh, so loud–it comes and I kick and fit and shake my fists. Eyes up, head down, at times– in hands. Tissue thrown in piles on floor.
I blurt my static…to Him. To husband. To my Carma friend.
Words of “whys” and “no’s” and fears and questions and closed hands and fed ups..my words.
“But Lord…”
“No Lord…”
“Enough Lord..”
Vivid dreams have turned from normal into nightmares. Can I just have one day of my life before? I don’t want this unknown anymore. I want concrete, expected, easy. I want pretty, no scars.
Lord, do you see?
My Lottie-3 -year- old- Mae, the bravest fighter, her mother torn from baby sister to seek treatment far away. Leukemia in a child is enough, Lord, enough. But..bacteria infection and pneumonia, too? Families who love and yearn, torn from each others presence? It seems too much..
Lord, do you see?
The man after me, there for radiation therapy. The only color in his face are blood shot eyes that are hollow, but still smile at me.
Lord?
My husband, who deals with enough by dealing with me. He is sitting at table, deep in thought, while shuffling the mounting bill piles, doing his best to make them all fit.
Lord.
The statistics they scare me, why can’t I have a concrete answer? Please? Stage 3a or Stage 3b? Which one is it? It matters to me.. 70% or 39%? Why can’t I let go of the numbers? Hands grasped, closed tight. Digits grasping digits.
These dear, strong, fighting women.
Stacy, Nancy, Amanda, Stacia, Veronica, Elaine, Connie, Gina, Michelle, Heather, Monique, Jill
Women who have felt lumps, endured scans, had parts of themselves cut on and cut out, allowed chemical chemo to flow through veins and radiation to burn both good and bad cells, who felt razors and cold air on scalp, have to take pills that keep wombs empty and all the while are wives and some mothers and burden bearers for each other. Oh Lord, these women!
Lord, do you see?
So. Much. Static.
The above is enough there is so much more. Unnamed more.
Lord?…?
“Yes, Amy, I see.”
“I know you are weary, but I am not.”
I SEE. I, too, wept.
I KNOW. I, too, have scars.
I can handle your cries to me, My child.
I’m so glad you’ve come to me…
For I am the Way. The Truth. The Light.
I will make sense of tragedy.
I will be your burden bearer.
Hand over the load. I was meant to bear it, not you.
Endure, child.
You know on this earth there will be pain and trials.
It was not meant to be this way, but it is.
I will fulfill my promise to make it all right again, in my time.
This is what it is in an imperfect, sin- infested world.
This is why I sent my Son, for a way out of it all.
I gave you the words to this song in your heart.
I gave you these words years ago, knowing you would need them in these fist shaking moments.
“This is what it means to be held, how it feels..
When the sacred is torn from life and you survive
This is what it is, to be held, and to know that the promise was
when everything fell, you’d be held.”
I am holding you.
I have not promised a pain free world and life.
But, I have promised that I AM Life, the Way,
and I will be holding you every step.
These are God’s whispers to me.
I listen.
I search Youtube and find that song.
I listen again.
The static volume lowers to just a whisper and I find truth–and I am held.
{Words To Natalie Grant’s “Held”}
Two months is too little
They let him go
They had no sudden healing
To think that providence
Would take a child from his mother
While she prays, is appalling
Who told us we’d be rescued
What has changed and
Why should we be saved from nightmares
Were asking why this happens to us
Who have died to live, it’s unfair
This is what it means to be held
How it feels, when the sacred is torn from your life
And you survive
This is what it is to be loved and to know
That the promise was that when everything fell
We’d be held
This hand is bitterness
We want to taste it and
Let the hatred numb our sorrows
The wise hand opens slowly
To lilies of the valley and tomorrow
This is what it means to be held
How it feels, when the sacred is torn from your life
And you survive
This is what it is to be loved and to know
That the promise was that when everything fell
We’d be held
If hope if born of suffering
If this is only the beginning
Can we not wait, for one hour
Watching for our Savior
This is what it means to be held
How it feels, when the sacred is torn from your life
And you survive
This is what it is to be loved and to know
That the promise was that when everything fell
We’d be held
Andrew Peterson-Dancing In The Minefields
I am heading into a surgical center today to sit with my husband.
He is having surgery to have his knee repaired.
Exactly a week from now, he will be with me as I have surgery, a double mastectomy.
I had a friend write on my face book “He will be your hands, you can be his feet“
That is how we have worked these last 14 years. Joined together. Filling in the others weakness, and when we fail (which has been often), our Lord steps in and fills in the areas we were never meant to fill in each other.
There have been many, many bumps in the road. Life has not always been easy, but because of our faith and goodness of our God, we have been able to stay strong and get through the minefields of life.
I love this song. I love the idea of “Dancing in the minefields.” We are. We are holding tight to each other and getting through them, many times stumbling, but more often, we are, actually, dancing.
Todd, I love you.
Well I was 19 you were 21
Everyone said we were much to young
But we did it anyway
We got the rings for 40 each from a pawnshop down the road
We said our vows and took the leap now 15 years ago
Chorus:
We went dancing in the minefields
We went sailing in the storm
And it was harder than we dreamed
But I believe that’s what the promise is for
Well ‘I do’ are the two most famous last words
The beginning of the end
But to lose your life for another I’ve heard is a good place to begin
Cause the only way to find your life is to lay your own life down
And I believe it’s an easy price for the life that we have found
Chorus:
And we’re dancing in the minefields
We’re sailing in the storm
This is harder than we dreamed
But I believe that’s what the promise is for
That’s what the promise is for
Bridge:
So when I lose my way, find me
When I lose loves chains, bind me
At the end of all my faith
to the end of all my days
when I forget my name, remind me
Cause we bear the light of the son of man
So there’s nothing left to fear
So I’ll walk with you in the shadow lands
Till the shadows disappear
Cause he promised not to leave us
And his promises are true
So in the face of all this chaos baby
I can dance with you
Chorus:
So lets go dancing in the minefields
Lets go sailing in the storms
Oh lets go dancing in the minefields
And kicking down the doors
Oh lets go dancing in the minefields
And sailing in the storms
Oh this is harder than we dreamed
But I believe that’s what the promise is for
That’s what the promise is for
This has been a theme song in my life for about the last 4 years. It now has new meaning, but is still so familiar and comforting. It is one that I have been going to often the last few days, for encouragement.
I wanna set the world on fire
Until it’s burning bright for You
It’s everything that I desire
Can I be the one You use?
[CHORUS]
I, I am small but
You, You are big enough
I, I am weak but
You, You are strong enough to
Take my dreams
Come and give them wings
Lord with You
Nothing I can not do
Nothing I cannot do
I wanna feed the hungry children
And reach across the farthest land
And tell the broken there is healing
And mercy in the Father’s hands
[CHORUS]
Take my dreams
Come and give them wings
Lord with You
Nothing I cannot do
Nothing I cannot do
My hands my feet
My everything
My life, my love
Lord, use me
I wanna set the world on fire
I wanna set the world on fire, yeah
Take my dreams
Come and give them wings
Lord with You
Nothing I cannot do
Take my dreams
Come and give them wings
Lord with You
There’s nothing I can’t do
Nothing I can’t do
I’m gonna set the world on fire
Set the world on fire









