“My peace I give to you;– Let not your heart be troubled, neither let it be afraid” (John 14:27).
“My peace I give to you;– Let not your heart be troubled, neither let it be afraid” (John 14:27).
I’m gonna start with some good news…not that I have any bad:) Yay!
We got the results back for the BRCA 1 gene test, and I tested NEGATIVE!! I was so very excited about that! BRCA 1 is a test for a gene mutation that runs in families that significantly increases the risk of breast and ovarian cancer. I was very worried for my 3 girls and my mom/sisters if this test would have been positive. What an answer to prayer!
It was great to see my doctor today. She was very pleased with how the tumor area felt. She is thinking the remainder of what we feel may be scar tissue, not tumor!!!! She cannot say this for sure, but she seemed pretty positive. Super exciting!
The lymph node area that has been concerning me was felt by her. She was only able to feel one and some swelling. I’ll try to explain what she said…
She said on one hand, she is concerned because that one lymph node has not changed. IF it contains cancer, that is not good…we want to see change. BUT, she said that the MRI showed the lymph node as being swollen, but no “activity” yet, so it could be that it is not cancer and just a lymph node that I have had awhile that for some reason has been swollen. Also, because I have felt different changes, (lymph nodes seeming to swell then go down within a few days,) that would be another sign that it is not cancer. She said that cancer would tend to stay consistent, grow, or significantly shrink from chemo…not come and go. I asked her if it is very common for people to just have swollen nodes under their arms that just hang out for awhile, and she said it is very common. Cool. I’ll take it.
So there really is no real answer until surgery is done and nodes are removed and studied. I am gonna try to quit worrying about it. I had no idea how easy it is for me to worry until all this cancer crap!
Because of the lymph nodes being a bit moody and her ability to feel what I have in my other breast (small, pebbly area), she wants to do another breast MRI before surgery. It will just ease both our minds and let us know if it is FOR SURE surgery time without any more chemo. She seemed very positive about everything and reassured me, and said to not let this MRI worry me. I’ll try to obey. MRI is around the 10th. She also ordered a pet scan, just to revisit the rib area where there was some question. She said our type of health insurance is known for being very stubborn and not approving of pet scans, so she was not very positive that they would approve it, but wanted to try anyway. If they say no, we will do another bone scan and compare the results to the one before. I’m already dreading the scans..I don’t like scans. At all. Ick.
Hmm, what else…
Surgery target date is the week after Christmas–double mastectomy with lymph node dissection–we won’t have a specific date until I meet with the surgeon, nurse is mailing me the consultation date…
Last chemo is this coming Monday–THAT IS SO EXCITING!! I feel so blessed that there won’t be any more sessions added on (at least we are pretty sure, MRI/PET scan will tell us for sure) Praise God for tumor shrinkage!!
Doc said she will not know about radiation until after surgery. It all depends on things like margins, how many lymph nodes (if any) etc.
Radiation scares me (not actually getting it done, but long term effects). I hope that it will be clear that it is NOT needed!
I will be meeting with a plastic surgeon to talk about type of reconstruction. There are a few different options, but being as thin as I am, I don’t know if I would qualify for using my own tissue (they take it from stomach or back flank area). It is looking like implants may be for me! I DID gain about 4 pound these last 3 weeks, which made me quite proud:) I have been paranoid about getting too thin through all of this chemo stuff. My church has done a great job of keeping me fed with regular meals. So thankful.
Oh my goodness I feel like I’m just jumping from one thing to the next, I hope this is making some sense! I’m hungry and ready for dinner so I’m rushing!!
I guess that is it for now. If you have any questions you can ask me in the guestbook section. I think I covered everything we talked about…I think.
I’ll end with a prayer request.I have a cold that kickin’ me! It makes me really tired! It is throat, nose and chest. No fever—yay—but I really would like to be well by Monday chemo. I do feel like it is movin’ through pretty fast, this is day 3 and I feel better than I did last night. My girl had it last week, guess I shouldn’t have kissed on her so much…
Two friends asked me to design an awareness/support bracelet, using their ideas and the color preferences of the patient. This will then be made available to the friends and family of the patient, if they want to purchase one to wear until she is in remission.
I’ll donate the first one to the patient, and it will be exclusively sold on my website (not linked to any other sites where I sell) and, eventually, retired. In addition, for every eight bracelets sold, I’ll donate another bracelet to be given in accordance with the patient’s wishes, thus providing for some individuals who would like to wear it and show support but have a financial hindrance.
If you are interested in purchasing one, please follow this link to a page designed specifically for the sale of the bracelet. They are $10 each + $2 for shipping. There are 4 sizes,( xs, s, m, and lrg).

Wednesday evening I was about to take my anti-nausea meds, and the label on the bottle caught my eye. It said “may cause extreme drowsiness and blurred vision.” I knew right away I would rather have nausea (as long as I could still eat) than to not be able to see or focus because of fog/fatigue. I skipped the meds, and it made for a much more “clear” Thursday. I felt somewhat productive since I didn’t have to lay in bed all day, although my stomach paid for it.
I have to pause and chuckle for a moment. It is funny what one considers a “good” day when going through chemo… here are some examples of what I mean…
~~I lost 2 toenails from chemo, but I still got 8 plus my fingernails, so its all good…
~~This film that forms on my tongue 2-4 days after chemo makes all food taste sicking-ly sweet, but I’ve learned if I scrape the heck out of my tongue, and gargle with a mouthwash that tastes like the deliciousness of Vicks Vapo Rub, my taste is normal again. Tasting food=great day.
~~I’m tired, achey and I feel like I have the stomach flu, but I’m vertical, so its a good day.
~~My skull, jaw bone and sternum are doing their deep ache dance, but that means the meds are working and my bones are producing lots of red/white cells– oh happy day!
~~My lips peel for at least 3 days after treatment, but they are so soft and pretty by day 6. Free lip peel? Makes for a good day..
~~My digestive system shuts down for 3 days after chemo, but I’ve figured out which foods get it going again, and when it happens… that, my friends, is a good day!
~~A crazy side effect of chemo is twitching. As I lay there to go to sleep, my pinky toe will come alive. Or, behind my rib, or my shoulder blade…it feels like popcorn popping right under my skin or bones. Does not make for a fun night, but during the day it keeps me company, so that’s good, right?
I say all these things in the spirit of staying real with you all.
I also say them, honestly, with a deep gratitude. I feel so thankful I have been able to figure out ways to get around or deal with most of these minor side effects, and that I have not dealt with anything too serious. God has been so very good!!
I now get why cancer patients are called “Fighters.” There are so many things, big and small, that come our way, so we fight.
I have felt sad as many of these side effects of chemo and cancer seem like they just strip femininity away (hair, nails, lips, breasts, brows, curves, sleep). But–I’ve chosen to see myself in a new light.
I AM a Fighter and I have the God of the Universe along side me. I have a new femininity, it is a fighter femininity. It makes me want to buy combat boots and wear car-gos (my favorite do-rag right now is a camouflage one:)) and kick this cancer outta here!
And for those days when I just can’t seem to find the good or the fight, you all step in with your words of encouragement, and He steps in with His Word of Truth, and reminds me that even in my weakness, I am strong.
Isaiah 40:31
But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint.
Philippians 4:13
For I can do everything through Christ, who gives me strength.
Beautiful song, love the ending.
This video was made manually, with no computer animations or digital affects. That is amazing.
I was always fascinated with Lite Brite as a kid. This video makes me want to replace the lost pegs to the one we have here at home and spend some time, when I feel better, creating with my girls.
Well, tomorrow is Chemo Round 3. I have mixed emotions about it. I am excited to just get on with it as we stretched it out to 4 weeks in between treatments instead of the normal 3 weeks due to low blood counts, and my desire to be feeling well for my girls spring break.
I am apprehensive as I know with this round, I will get the shot that brings on the bone pain and spirals me into a weakness that is hard to explain.
I also will be getting the test results back from the side pain I have been having (details on my Caring Bridge journal). I won’t lie, I am afraid of what could be coming my way with those results.
My mind could easily get carried away with the “what -ifs” and heads there too often despite my fight to keep truth in mind.
I plan on blasting the song “Lovely Day” tomorrow morning before chemo, it always brightens my day. The phrase in the chorus “Heaven on the inside, my soul is gonna fly away” is one that is comforting to me. I have Jesus in my life –Him in me– and because of that my soul can soar daily, no matter what the circumstances.